<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:wfw="http://wellformedweb.org/CommentAPI/" xmlns:dc="http://purl.org/dc/elements/1.1/" >

<channel><title><![CDATA[National Shattering Silence Coalition - BLOG]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog]]></link><description><![CDATA[BLOG]]></description><pubDate>Wed, 15 Jul 2026 03:36:37 -0700</pubDate><generator>EditMySite</generator><item><title><![CDATA[From Classroom To Courtroom]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/from-classroom-to-courtroom]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/from-classroom-to-courtroom#comments]]></comments><pubDate>Tue, 14 Jul 2026 13:18:40 GMT</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/from-classroom-to-courtroom</guid><description><![CDATA[         My son was two years old when I began having concerns about his unusual behaviors. As a young mother, I reassured myself by thinking, &ldquo;It&rsquo;s okay, he is just being himself.&rdquo; However, by the age of four, significant behavioral outbursts began to emerge. By five, when he started school, I was told he &ldquo;had to be medicated for his own good,&rdquo; rather than having his mental, emotional, or intellectual needs properly addressed. That marked the beginning of what felt [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/leigh-oliver-post-image_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="wsite-spacer" style="height:50px;"></div>  <div class="paragraph" style="text-align:left;"><span style="color:rgb(0, 0, 0)"><span>My son was two years old when I began having concerns about his unusual behaviors. As a young mother, I reassured myself by thinking, &ldquo;It&rsquo;s okay, he is just being himself.&rdquo; However, by the age of four, significant behavioral outbursts began to emerge. By five, when he started school, I was told he &ldquo;had to be medicated for his own good,&rdquo; rather than having his mental, emotional, or intellectual needs properly addressed. That marked the beginning of what felt like a never-ending cycle of appointments, negative behaviors, and school visits.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span>From the start, he was given the common diagnosis of ADHD and prescribed Adderall. Instead of improving, he spiraled further out of control. I attended IEP meeting after IEP meeting, pleading for meaningful support for my child. He was referred to therapists and psychiatrists for testing, and the list of diagnoses continued to grow while his medications were repeatedly changed. Eventually, he was diagnosed with severe dysphonetic dyslexia. Despite this, the IEP meetings only became more difficult, as the school continually failed to provide the services he truly needed. The focus always returned to his behavior &mdash; that he could not sit still or follow directions.</span></span><br /></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span style="color:rgb(0, 0, 0)"></span>The school board eventually became involved in one of the IEP meetings, resulting in arrangements that were promised but never accomplished. An IQ test later revealed that, at only five years old, he had the auditory comprehension of a child twice his age and a verbal vocabulary stronger than that of many adults. I ultimately enrolled him in an outside dyslexia program so he could learn to read, write, and spell, while the school appeared more focused on containing his behavior. At that time, his behavior primarily consisted of being loud and making noises, likely stemming from boredom and inadequate academic stimulation.<br /><br />This pattern continued throughout elementary school and into middle school. Eventually, he was removed from his school and placed in a special education classroom in another city. This led to his first psychiatric hospitalization. By the age of twelve, he was effectively &ldquo;sentenced&rdquo; to an alternative school, which became a major turning point in his life.<br /><br />&#8203;<span style="color:rgb(0, 0, 0)">Because of his social anxiety and poor emotional regulation, he had never truly formed friendships outside of sports. At the alternative school, he began associating with other boys. One day, they walked to a nearby chain store where he stole an item costing less than twenty dollars. Feeling guilty, my son turned the item over to the school resource officer at the alternative school.&nbsp;Without&nbsp;my permission, the officer contacted the store and arranged for my son to apologize. As a result, he was placed on probation because the store enforced a zero-tolerance theft policy.</span><br /><br /><span style="color:rgb(0, 0, 0)">I believe it is important to note that this same &ldquo;alternative&rdquo; and supposedly rehabilitative school would frequently call me regarding his behavior and then leave both of us alone in the principal&rsquo;s office so that I could physically discipline him. I never did. Instead, I would plead with my son to choose better ways to cope with his anger. At twelve, my son already had a juvenile record, a probation officer, court involvement, community intervention programs, therapists, psychiatrists, continual medication changes, and an ever-growing list of diagnoses. He had officially entered the justice system.</span><br /><br /><span style="color:rgb(0, 0, 0)">At nearly every behavioral incident, he was placed in juvenile detention &mdash; shackled and chained &mdash; for being a child who could not &ldquo;sit still&rdquo; in a classroom and who acted out because of inadequate interventions and support. This led to placements ranging from a wilderness program to two separate detention centers across the state. The state officials stepped in and suggested he be removed from my custody and placed in a group home. Due to&nbsp;no&nbsp;negligence of my parenting, but to the inadequacy of the system built to &ldquo;help&rdquo; him. I denied this request, stating that my child would remain with me.&nbsp;No&nbsp;matter how my son behaved, the hours I missed from work, or how many times I cried in the shower so nobody could hear, he was my little boy who I would always love and fight for.&nbsp;</span><br /><br /><span style="color:rgb(0, 0, 0)">By fifteen, he stopped taking his medications and refused to attend school. He agreed to move in with his biological father to start high school, hoping that a change in environment might help. It did not. Within a few months, he was placed on probation again for allegedly &ldquo;bullying&rdquo; a girl after making an inappropriate but nonsexual comment. After another incident, he was once again placed in a detention home.</span><br /><br /><span style="color:rgb(0, 0, 0)">This particular facility, however, provided exceptional care. During his time there, he fully committed himself to his education and excelled academically. With accommodations that addressed his dyslexia, he caught up on assignments and earned credits at an impressive pace. Upon release, he was stable, hopeful, excited to attend a traditional school, and eager to play sports again. He returned to live with me in another part of the state.</span><br /><br /><span style="color:rgb(0, 0, 0)">However, when I attempted to enroll him in school, we learned that because the detention center was not contracted with the local school district, he was given only two options: either take an unassisted standardized exam or start over in the ninth grade. Despite all the hard work he had done, he should have been entering the eleventh grade. Faced with those choices, he decided to quit school entirely. That was when everything truly fell apart.</span><br /><br /><span style="color:rgb(0, 0, 0)">At sixteen, he was left&nbsp;without&nbsp;the skills necessary to enter the workforce, unable to pass a standardized test, and deeply angry that his academic achievements had effectively been disregarded. Like so many tragic and familiar stories, he fell in with the wrong crowd &mdash; older adolescents who influenced him negatively. He began smoking marijuana, staying out late, and living&nbsp;without&nbsp;direction or purpose. He was defeated.</span><br /><br /><span style="color:rgb(0, 0, 0)">During this time, he committed his first serious crime. He was persuaded by two others to rob a local convenience store using an airsoft gun. He walked away with only thirty-three dollars. At seventeen, he was placed in county jail, where he remained until he turned eighteen and received a sentence of twenty years, split to serve two. He was then sent to prison, where he endured experiences I cannot even begin to imagine.</span><br /><br /><span style="color:rgb(0, 0, 0)">He will turn twenty-seven this year. For the past decade, his life has been consumed by the vicious cycle of addiction, incarceration, homelessness, and despair. He is a devastating example of the school-to-prison pipeline.</span><br /><br /><span style="color:rgb(0, 0, 0)">Although my son never received a formal diagnosis, Bipolar disorder was considered because of his episodes of mania. At the time, we were told he was "too young" for a definitive diagnosis. He entered the prison system at seventeen and has not received an updated psychiatric diagnosis since he was fifteen, despite continuing to display symptoms consistent with schizoaffective disorder.</span><br /><br /><span style="color:rgb(0, 0, 0)">Throughout all of this, some may ask: where was I, his mother? I was there from the very beginning, fighting and begging for help for the two-year-old child who first showed signs that he needed additional support. Yet in a society where behavior, socioeconomic status, and race often determine who receives compassion and assistance, real help never came &mdash; unless it arrived in the form of shackles or another diagnosis.</span><br /><br /><span style="color:rgb(0, 0, 0)">My son is truly a good man. Although he is currently sitting in a jail cell, he is working hard to overcome the difficult circumstances life handed him. His road may never be easy, but I will continue to stand beside him when every other system has failed him.</span><br /><span style="color:rgb(0, 0, 0)">No mother should have to spend decades fighting for help while watching every system around her respond with handcuffs instead of hope.</span></div>  <div><div style="height: 20px; overflow: hidden; width: 100%;"></div> <hr class="styled-hr" style="width:100%;"></hr> <div style="height: 20px; overflow: hidden; width: 100%;"></div></div>  <div class="paragraph" style="text-align:left;"><em><span style="color:rgb(0, 0, 0)">At the National Shattering Silence Coalition, we believe this story is not simply about one young man. It is about what happens when warning signs are repeatedly recognized but meaningful intervention never follows. It is about a system that responded to unmet needs with punishment, to struggles with labels, and to crisis with confinement. Every missed opportunity carried a cost until the consequences became life-altering.<br />&#8203;</span><br /><span style="color:rgb(0, 0, 0)">His story reminds us that treatment, educational support, family engagement, and early intervention are not just compassionate choices&mdash;they are public safety strategies. No child should be routed from classroom to courtroom because the systems responsible for helping them failed to meet their needs. Treatment saves lives. Neglect costs lives. And far too often, it costs futures.</span></em></div>]]></content:encoded></item><item><title><![CDATA[From Psychosis to Purpose: A Story of Recovery]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/from-psychosis-to-purpose-a-story-of-recovery]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/from-psychosis-to-purpose-a-story-of-recovery#comments]]></comments><pubDate>Sun, 28 Jun 2026 16:18:17 GMT</pubDate><category><![CDATA[Uncategorized]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/from-psychosis-to-purpose-a-story-of-recovery</guid><description><![CDATA[         Much of my life has felt like a rollercoaster&mdash;not the kind you ride over and over with friends because it's fun, but the old, rickety one-seater that rattles with every turn while you close your eyes and pray the ride will end soon.&nbsp;Mental illness was the driving force of this ride. And it could have ended very badly. &lsquo;Could have&rsquo; is key here. I overcame fears. I had the support of others around me. And I made it through the days I hope I&rsquo;ll never have to re [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/andrew-weinnig_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="wsite-spacer" style="height:50px;"></div>  <div class="paragraph" style="text-align:left;"><span style="color:rgb(34, 34, 34)">Much of my life has felt like a rollercoaster&mdash;not the kind you ride over and over with friends because it's fun, but the old, rickety one-seater that rattles with every turn while you close your eyes and pray the ride will end soon.</span><span style="color:rgb(34, 34, 34)">&nbsp;Mental illness was the driving force of this ride. And it could have ended very badly. &lsquo;Could have&rsquo; is key here. I overcame fears. I had the support of others around me. And I made it through the days I hope I&rsquo;ll never have to relive. Here is my story.<br /><br /></span><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Like many, I experienced the typical trauma of being picked on at a young age. From other kids throwing remarks because I was the chubby kid, to the not so funny videos my brother&rsquo;s friends made of me during their drunken skip day. The events contributed to my early-aged episodes of depression. Throw in the fact that I had open heart surgery at the age of five, and my childhood was already far from ideal. Some might call me a momma&rsquo;s boy, but I won&rsquo;t apologize for being pampered as the baby of the family.&nbsp; It definitely helped me get through the early years.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Heart surgery was just the beginning of my hospital days. When I was in the second grade, I broke my wrist on the growth plate. Five years later, I had to have three inches removed from another part of my arm, in hopes of balancing out the stunted growth in my wrist. This two-week stay in the hospital was not exactly a vacation.</span></span><span style="color:rgb(34, 34, 34)"></span><br /></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Again, I pressed on. I worked up the courage to run for eighth grade student council president the next year, and I won&ndash;a victory, at last! My high school years didn&rsquo;t have a bad start, either. I was a decent soccer player, and I wasn&rsquo;t the worst in academics. Then, as a freshman, I tried alcohol for the first time.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I remember the thrills alcohol brought, like the added enjoyment of my cousin&rsquo;s wedding with all the girls dancing with me. And it didn&rsquo;t take me long to have my first try at marijuana. By my junior year, drinking and smoking had become an added recreation. It was every weekend. Somewhere along the way by my senior year, I experienced my first, unwelcomed signs of mental illness.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I did risky, reckless, and dangerous things. Driving under the influence. Throwing a brick through a car window. The things parents hope they only see in movies and stay up at night praying, &ldquo;that&rsquo;s not my kid.&rdquo; That was me. Maybe these were signs of mental illness. Maybe I was just an asshole. Neither answer was probably wrong.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I remember my mom saying, if not for the heart surgery as a kid, I wouldn&rsquo;t have lived past eighteen. I started worrying that my final destination would soon be catching up with me. Paranoid about my heart, along with the internet telling me I may still die young, I went to a cardiologist. Turns out, I was fine and had an athlete&rsquo;s heart. I graduated high school as a valedictorian and was stoked about college. I got into my state&rsquo;s flagship campus and was ready for this next adventure.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">College was a lot harder than high school. Classes didn&rsquo;t go so well for me, and I struggled socially. My brother was in a fraternity, so I thought I would have a good chance of getting in as a legacy. I got drunk the final night of rush, acted bizarre, and was blackballed. I got depressed and overwhelmed. I contemplated suicide. I spent most of my days in bed. But I didn&rsquo;t want to give up. Before long, my brother pulled me out of bed, and out of school, but not quite out of my funk.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Thankfully, my parents took me in. My dad helped me get a job on the military base near our home. It was during the Iraq war, and every day there was a headline about another market being attacked by a suicide bomber and many people being killed and injured. It got to my psyche. I stayed up late drinking beer and smoking weed, along with journaling every night. I would barely make it to work on time each morning.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I was in a precarious situation. I wanted to go back to school, but work was the only thing holding me together. After eight months, I took the risk, and went back to school&ndash;this time at a different university. Just before the semester began, I took a family trip to Hawaii. It was then I started having delusional thoughts that would make no sense to others.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">The day before we flew back home to Louisiana, Hurricane Katrina hit New Orleans. Weeks later, Hurricane Rita hit my side of the state. Without the structure of work, and having the new stress of school, I began decompensating. My parents came to stay with me to help me with the transition. They didn&rsquo;t have power in their town anyway.</span></span><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Here comes an official, mental breakdown.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I had a biology teacher who was in the pits of despair because his daughter was in school in New Orleans. And people were saying New Orleans deserved what it got because of it being Sin City. Something snapped in me, the normally shy guy in the back. In front of a class of at least a hundred students, I yelled out, &ldquo;think positive!&rdquo; Class was dismissed.</span></span><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I left class and thought I was going to do something big, but I didn't know what it was. I drove to a gas station, where I gave the lady working there a Ben Harper CD rather than money for a pack of cigarettes. She told me she had to call the police as I left. I was arrested, taken to jail, and I was fully delusional.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">How delusional?</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I thought a guy in my jail cell was the author of Fight Club, and I started rhyming to him. I was punching walls as if I was working out, along with random pushups. I also had developed thoughts about how to solve global warming.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I was in a crisis, and my mom bailed me out. My parents didn&rsquo;t know what to do with me, other than take me back home. One evening after dinner, I took an unannounced walk. My mom quickly became fearful, not knowing where I was, and she worried I was on drugs. So, she called the police.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">The cops found me. I was psychotic, and I couldn&rsquo;t see them because they were shining a bright light in my eyes. They tackled me, maced me, and I thought they shot me. I thought surely, I was on my way to hell. They threw me in a jail cell, and I didn&rsquo;t know what was going on. After not eating or drinking anything for four days. I was on the edge of death.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Then, my jail cell opened. It was my dad. I couldn&rsquo;t recognize him. And as you can imagine, that shook him.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I was taken to a military hospital, then sent to a psychiatric hospital out of state. I was medicated and sent home after two weeks. I got a diagnosis of atypical psychosis. I was medicated for six months, and my psychiatrist wanted to see if I could function without medicine.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I managed for a while but became psychotic again. For the next four years, I went through fifteen-month cycles on and off medication. After an actual suicide attempt, another hospitalization, and a diagnosis of manic depression with psychotic symptoms, I realized I needed to stay on medication. My only other option was the grave.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Somehow along the way, I managed to finally graduate with an undergraduate degree. The military base I used to work at had a new contractor that hired people with disabilities. It was supportive work, which I needed. It got me outside with fresh air. The daily labor gave me exercise, which had its own healing effects. It gave me time to build up a work ethic and a routine. I&rsquo;ve now worked there for almost fifteen years.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Medicated, I&rsquo;m free of positive symptoms, and my psychiatrist thinks I am in remission from schizophrenia. After six stable years, I met my soulmate. I shared my entire history with her on date number two, and there was still date number three. We were married in 2017, bought a home in the country, and have a life filled with love. In 2021, we welcomed a daughter, and she has brought us so much joy.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">Not every story is happy ever after. Or &ndash; not every rollercoaster ends with peace.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">To my parents:</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I couldn&rsquo;t have recovered without them. My dad was always the calm to get me through the storm, and my mom always helped me build things back up and kept me focused on moving forward.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">To those facing mental illness:</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">There can be better days. Don&rsquo;t be afraid to reach out. Whether it is leaning on a friend or family member to overcome the feeling of loneliness or seeking medical help if things don&rsquo;t seem right. Early intervention can save a lot of pain and heartache and can lead to better outcomes.&nbsp;</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">To those with loved ones facing mental illness:</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">We need you. And we know our struggles can make your life hard and uncomfortable. But the patience and support you show to us can literally be the difference in whether we have the courage to make it through and the resources to seek professional help when needed.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">To those who are fortunate not to personally encounter mental illness:</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I challenge you to join me as an advocate to break through the stigma and form acceptance. Our country needs more supported employment and structure for those with mental illness. And a little bit of simple kindness can go a long way when encountering those who are struggling.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">I experienced many dreadful years, I did things I&rsquo;m far from proud of, and I&rsquo;ll forever fall into the classification of &ldquo;treated for mental illness.&rdquo; But I consider myself one of the lucky ones. I had the support system to get me through some of my toughest days. I got medical help at the right time. And I carry out a positive and productive life.<br />&#8203;</span></span><br /><span style="color:rgb(0, 0, 0)"><span style="color:rgb(34, 34, 34)">My story may sound shocking to those who know me, but never knew these details. Parts of my story may sound like just a &ldquo;normal case&rdquo; to someone dealing with mental illness. And to some, it may make you feel uncomfortable. But my hope is that my story may bring just a glimmer of light to those living in the darkest days.</span></span><br /><br /><em><span style="color:rgb(0, 0, 0)"><span>This story is a powerful reminder that treatment saves lives, while delayed intervention and lack of understanding can have devastating consequences. With family support, medical care, structure, and perseverance, recovery and stability became possible. Too often, individuals living with severe mental illness encounter the criminal justice system before they encounter meaningful treatment. No family should have to navigate psychosis, incarceration, or suicide attempts alone. Stories like this remind us why early intervention, continuity of care, supported employment, and compassionate treatment matter. Recovery is possible, but only when people are given the support, treatment,&nbsp;</span></span><span style="color:rgb(0, 0, 0)"><span>and dignity they deserve.</span></span></em><br /><br /></div>]]></content:encoded></item><item><title><![CDATA[The Human Count: Surf, Psychosis, and the Ultimatum That Saved My Life]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/the-human-count-surf-psychosis-and-the-ultimatum-that-saved-my-life]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/the-human-count-surf-psychosis-and-the-ultimatum-that-saved-my-life#comments]]></comments><pubDate>Wed, 17 Jun 2026 21:11:43 GMT</pubDate><category><![CDATA[depression]]></category><category><![CDATA[hospitalization]]></category><category><![CDATA[schizophrenia]]></category><category><![CDATA[serious mental illness]]></category><category><![CDATA[Treatment Saves]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/the-human-count-surf-psychosis-and-the-ultimatum-that-saved-my-life</guid><description><![CDATA[       Life doesn&rsquo;t always happen the way you expect. At 18, I had the world ahead of me. I told myself that by 21 I&rsquo;d have a career, a degree, and a girlfriend. I thought about travel, kids, and a bright future.&#8203;But life had other plans. About a month after my 21st birthday, I found myself locked inside a psychiatric hospital for 17 days on a 51/50 hold. I had no idea what a "psychotic break" actually meant, because in my eyes, I was fine. Everyone else had the problem. Not me [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:30px;margin-left:0px;margin-right:0px;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/published/patrick-surfing.jpg?1781731111" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(31, 31, 31)">Life doesn&rsquo;t always happen the way you expect. At 18, I had the world ahead of me. I told myself that by 21 I&rsquo;d have a career, a degree, and a girlfriend. I thought about travel, kids, and a bright future.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">&#8203;But life had other plans. About a month after my 21st birthday, I found myself locked inside a psychiatric hospital for 17 days on a 51/50 hold. I had no idea what a "psychotic break" actually meant, because in my eyes, I was fine. Everyone else had the problem. Not me.</span></span></div>  <h2 class="wsite-content-title"><font size="5">Part 1: Surf, School, Sleep &amp; Repeat</font></h2>  <div class="paragraph" style="text-align:left;">Before my mind fractured, life was simple. Aside from classic teenage angst, my daily loop was surf, school, sleep, and repeat. I had friends I loved, a good life, and a general sense of whatever happens, I&rsquo;ll figure it out. Up until then, I&rsquo;d been able to navigate life's obstacles and bounce back quickly. It was easy to assume things would just stay that way. There was nothing a good night with friends, a solid surf session, and maybe a little bit of bud couldn&rsquo;t fix.<br /><br />My brain had other plans.</div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(31, 31, 31)">Around the age of 19, after a camping trip and some psychedelics, reality started to get funny. Things weren't simple anymore. People acted differently, strange patterns emerged that I&rsquo;d never noticed before, and my moods took on a terrifying, foreign intensity. "Depression" and "anxiety" were foreign words to me. "Schizophrenia" wasn't even in my personal vocabulary.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">After that trip, a dark isolation settled in. My thoughts detached from the world&rsquo;s logic. I remember my parents telling me they were worried, but I couldn't comprehend why. </span><span style="color:rgb(31, 31, 31)">How could they be worried about me? I&rsquo;m totally fine.</span><span style="color:rgb(31, 31, 31)"> When you are slipping into psychosis, it is incredibly hard to take a step back. </span><br /><br /><span style="color:rgb(31, 31, 31)">I did try once, very early on. I went to a doctor and was diagnosed with social anxiety. But the further I retreated into my own head, the less I was willing to listen to the advice of professionals or the people who loved me.</span></span></div>  <h2 class="wsite-content-title"><font size="5">Part 2: The Myth of the Misunderstood Genius</font></h2>  <div class="paragraph" style="text-align:left;">By the time I turned 20, a dangerous delusion took root. I became convinced that I was simply a misunderstood genius. I told myself I hadn't reached my true potential yet, and that was the sole reason I was experiencing these psychological problems.<br /><br />To a neurotypical mind, that idea doesn't hold water. But when you are dealing with budding psychosis, accepting that something is fundamentally wrong with your brain is a hard pill to swallow. My mind spun an intricate narrative about a cosmic battle between good and evil, and I was right at the forefront of it. It didn&rsquo;t have to make sense to anyone else, because it made perfect sense to me.<br /><br />They say there are five stages of grief, denial being the first. Living with untreated schizophrenia is a form of grief. Except, staying in that first phase of denial feels like you&rsquo;ve been condemned to live in limbo for the rest of your life. You are constantly chasing a "shining alternative" just on the other side of your thoughts. Your brain tells you that if you can just clear one more obstacle, or do one more extraordinary thing, it won't be a mental illness anymore. Everyone will finally see you as the genius who changed the world.<br /><br />Sounds odd, right? But I can almost guarantee that if someone reading this has survived a psychotic break, they are reading this thinking, oh yeah, that's totally normal.</div>  <h2 class="wsite-content-title"><font size="5">Part 3: The Blur of the 51/50</font></h2>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(31, 31, 31)">Those delusions eventually led to total isolation. I was living at my parents' house, leaving my bedroom maybe once a week just to eat. Eventually, the tension grew too high. I was kicked out and ended up renting the cheapest room I could find on Craigslist.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Two months later, my reality shattered completely.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">I found myself at work one day, completely paralyzed and unable to speak a single word. An all-consuming fear told me that if anything came out of my mouth, horrible things would happen to my family. Someone called an ambulance, and I spent hours strapped to an ER bed.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">That entire day is a blur. I can't remember a single word anyone said to me. The only thing anchored in my memory is the worst case of racing thoughts I&rsquo;ve ever experienced, and the desperate belief that if I just kept my eyes tightly closed, I wouldn't have to comprehend what was happening. I got to the ER in the morning; I didn't leave until after dark, loaded into a second ambulance with paramedics telling me they were taking me somewhere safe.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">The hospital unit, despite the initial chaos, became an uneventful routine of containment. They loaded me up on heavy medications and yelled "SMOKE BREAK!" at the top of every hour. I wasn't even a smoker at the time, but when there is sunshine outdoors and nothing else in your life makes sense&mdash;screw it, why not take a free cigarette? We solved crossword puzzles and drank weak coffee all afternoon. Every once in a while, you&rsquo;d hear someone screaming down the hallway, but with enough Seroquel and free cigarettes in your system, you couldn&rsquo;t care less.</span></span></div>  <h2 class="wsite-content-title"><font size="5">Part 4: The Ultimatum</font></h2>  <div class="paragraph" style="text-align:left;">When I was finally discharged, I immediately fell into the classic trap: &ldquo;Hey, I&rsquo;m feeling better now, why the hell do I need these meds?&rdquo; It didn't register that the meds were the exact reason I felt stable.<br /><br />I abandoned my treatment and spent the next two years down a dark, stressful rabbit hole. My family and I fell into a toxic routine: they would yell at me to see a doctor, I would pretend to agree, ditch the appointment, and we&rsquo;d go right back to yelling. Looking back, I can't imagine how frantic and exhausting I must have been to live around.<br /><br />Finally, my dad drew a hard line in the sand. He gave me a choice: take the medication, or get out on the streets.<br /><br />Naturally, I thought it was a bluff. I called it.<br /><br />Turns out, my dad wasn&rsquo;t bluffing. It was sleep on the concrete, or take the pills. Faced with the reality of homelessness, I finally relented. I chose the meds.<br /><br />Progress was slow. It took multiple trial-and-error adjustments and a few different psychiatrists before we saw real stability. Because of the threat of the streets, I kept showing up to those appointments. Finally, we found a doctor who clicked, and an antipsychotic regimen that took effect. Slowly, the cloud began to lift.<br /><br />My own mind would have never noticed the difference, but the changing reactions of the people around me gave me insight. I received my formal diagnosis of schizophrenia around that time. It was another profound wave of grief. The diagnosis was the final nail in the coffin of my delusions; my days of assuming I was just a misunderstood genius were gone. I had a chronic brain disease instead.</div>  <h2 class="wsite-content-title"><font size="5">Part 5: The Path Forward is a Little Pill at Night</font></h2>  <div class="paragraph" style="text-align:left;">Despite the grief, I started to dig myself out of the hole. I reached back out to old friends. My family and I stopped yelling and started healing. Still, an overarching feeling remained: I'm always going to be different. I didn't know a single soul who had schizophrenia. As far as I was concerned, anyone with my condition was either locked away in a hospital or struggling on the streets. I constantly feared I&rsquo;d end up back there myself.<br />But I didn't.<br /><br />I went back to school and finished my Associate&rsquo;s Degree. Then I got accepted into a four-year university. I quit smoking weed. I felt a sense of clarity and success I hadn't known in years. There was finally a clear path forward, and all I had to do to keep it was something as simple as popping a little pill at night. If you had told me that a few years prior, I wouldn't have given you the time of day.<br /><br />Life wasn't suddenly sunshine and rainbows, but I finally had control over my own mind. I joined a fraternity in college. One night, I stood up in front of a room of 50 guys and said out loud for the first time: "I have schizophrenia." That was massive for me. I laid bare my darkest secret to a room full of dudes. That community single-handedly helped cure the deep stigma I held against myself for being labeled with that word.<br></div>  <h2 class="wsite-content-title"><font size="5">Part 6: Conquering the Corporate Office</font><br /></h2>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(31, 31, 31)">Of course, recovery is rarely linear. While my social anxiety was gone, an alcohol problem took its place. I started drinking heavily enough to drop out of school. I went back to working as a surf instructor, constantly worrying, </span><span style="color:rgb(31, 31, 31)">how the hell am I going to support myself doing this?</span><span style="color:rgb(31, 31, 31)"> Then COVID hit, and like many others dealing with mental health struggles, the isolation hit hard. I sat around drinking rum smoothies at 10:00 AM because "COVID rules" meant nothing mattered.</span></span><br />&#8203;<br /><span><span style="color:rgb(31, 31, 31)">The turning point came when they finally opened the beaches back up. Despite the heavy drinking, surfing still sounded better than sitting on the porch knocking them back all day. I hit the waves every single day for nine months. Through that, I realized something vital about myself: if I am motivated by something, nothing can stand in my way.</span></span><br /><span><span style="color:rgb(31, 31, 31)"><br />When the unemployment funds ran out, a buddy hired me for a manufacturing job at a small company. He told me if I did well, he&rsquo;d move me into the sales office. That was my golden ticket. I had conquered psychosis; now it was time to conquer self-sufficiency. At that point, the thought of having schizophrenia was no longer a voice telling me, "You can't do this."</span><span style="color:rgb(31, 31, 31)"> So I did it. I outworked everyone, made it into the sales office, and finally had something concrete to put on a resume other than "surf instructor." I was legitimate. I ran with that opportunity faster than anything before.</span></span><br /><span><span style="color:rgb(31, 31, 31)"><br />Eventually, I transitioned into a corporate sales role. I&rsquo;d never worked in an environment like that in my life. But I thrived. I won sales competitions, brought home awards, and became a highly valued contributor to a team. After years of believing my life could never be normal, I had built something unassailable.</span></span><br /><span></span></div>  <h2 class="wsite-content-title"><font size="5">June 2026: Empathy as a Leadership Quality</font></h2>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(31, 31, 31)">Today, it is June of 2026. I am almost six months completely sober. I have an amazing girlfriend, a successful corporate tech job I once thought was impossible, independent housing, and&mdash;hell&mdash;I even got a cat. These are milestones that felt completely out of reach the day I heard a doctor say the word "schizophrenia."</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">&#8203;Living with this diagnosis also makes you a strange magnet for other survivors. It isn't always something that comes up naturally, but whenever it does, I get an instant, visceral, "Dude, me too."</span><span style="color:rgb(31, 31, 31)"> From there, it's an immediate friendship built on complete solidarity.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">My brother and I had a conversation recently, and he mentioned that research shows people who survive serious psychiatric conditions often possess deep leadership qualities because of the profound empathy they naturally develop. That completely flipped my perspective.</span></span><br /><span><span style="color:rgb(31, 31, 31)">Was that a horrific, agonizing window of years? Yes. But I learned exactly what I am made of. I made it through a condition that society stigmatizes as a hopeless dead end, and I came out the other side as a success story.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">I am damn proud of myself, incredibly grateful for my support system, and I know exactly what it means to bounce back. </span><span style="color:rgb(31, 31, 31); font-weight:700">Treatment didn't change who I was&mdash;it gave me my life back.</span></span></div>  <h2 class="blog-author-title">Author</h2> <p>Patrick Sichel, Senior Business Development Representative, Buzz Solutions</p>  <div class="paragraph" style="text-align:left;"><em>Patrick&rsquo;s journey reminds us of the profound human potential that lies just on the other side of a severe mental illness diagnosis. His transition from the deep isolation of untreated psychosis to a thriving, independent career in technology is a powerful testament to what is possible when the right treatment clicks. While every family&rsquo;s path through a psychiatric crisis is unique&mdash;and many must navigate barriers that lack easy answers&mdash;Patrick&rsquo;s story offers a beacon of hard-won hope. It proves that a diagnosis of schizophrenia does not define a person's future. With sustained clinical care, a dedicated support system, and the solidarity of peers who truly understand the struggle, recovery is achievable.</em></div>]]></content:encoded></item><item><title><![CDATA[The Carousel Has a Human Count: What the Numbers Tell Us About a System Built to Wait]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/the-carousel-has-a-human-count-what-the-numbers-tell-us-about-a-system-built-to-wait]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/the-carousel-has-a-human-count-what-the-numbers-tell-us-about-a-system-built-to-wait#comments]]></comments><pubDate>Mon, 15 Jun 2026 22:31:31 GMT</pubDate><category><![CDATA[Criminal Justice]]></category><category><![CDATA[homelessness]]></category><category><![CDATA[incarceration]]></category><category><![CDATA[In Justice]]></category><category><![CDATA[serious mental illness]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/the-carousel-has-a-human-count-what-the-numbers-tell-us-about-a-system-built-to-wait</guid><description><![CDATA[       This is the third installment of the NSSC In Justice series&mdash;a collaborative chronicle exposing the structural failures of America's crisis containment loop. While Part 1 by Carmen Facciolo laid bare the agonizing choice families face when forced to wait for a loved one's catastrophe, and Part 2 by Kerry Martin exposed the terrifying reality of surviving a brain in active psychosis while being abandoned on a street corner, Executive Director Ann Corcoran steps forward in Part 3 to br [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:30px;margin-left:0px;margin-right:0px;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/injusticeblog3_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="paragraph" style="text-align:left;"><em>This is the third installment of the NSSC <a href="https://www.nationalshatteringsilencecoalition.org/in-justice.html" target="_blank">In Justice series</a>&mdash;a collaborative chronicle exposing the structural failures of America's crisis containment loop. While Part 1 by Carmen Facciolo laid bare the agonizing choice families face when forced to wait for a loved one's catastrophe, and Part 2 by Kerry Martin exposed the terrifying reality of surviving a brain in active psychosis while being abandoned on a street corner, Executive Director Ann Corcoran steps forward in Part 3 to break down the hard, human arithmetic of a system designed to wait.</em></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(0, 0, 0)">In our first two installments, we argued that mental health reform and public safety reform are not two conversations &mdash; they are one. We made the case that America keeps building systems that demand catastrophe before they respond, and that compassion is not standing by while a person deteriorates toward homelessness, incarceration, or death.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">That was the argument. This is the arithmetic.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">When you count the people moving through the system we have built &mdash; the jails, the emergency rooms, the encampments, the morgue &mdash; one undeniable pattern emerges. We are not running a treatment system that occasionally fails. We are running a containment system that works exactly as designed, and the design is lethal.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">What "Waiting" Actually Costs<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">Start with the final number. The United States records roughly 49,000 deaths by suicide every year, and about half of those who die have a known mental health condition at the time of death. Major depressive disorder alone is implicated in 50 to 60 percent of suicides where a psychiatric driver is present. People living with bipolar disorder face a lifetime suicide risk ten to thirty times higher than the general population.<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">These are not deaths from untreatable conditions. They follow the same script: escalating signs, a family asking for help, a system replying that the threshold for intervention has not been met. That threshold, too often, turns out to be death itself.</span></span></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(0, 0, 0); font-weight:700">The System We Actually Built Is a Jail<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">If the front door to care stays locked until "imminent danger," people do not disappear. They get routed to the only doors that stay open &mdash; and those doors are the correctional system.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">Of the roughly 5.4 million Americans under correctional supervision on any given day, an estimated 15 to 20 percent meet the criteria for an active severe mental illness &mdash; between 810,000 and 1.08 million people held inside a system never built to treat them. In local jails, the high-churn front line, roughly 44 percent of inmates have a documented history of mental illness, and about 36,000 at a time are living with schizophrenia or another psychotic disorder. They are not being diverted to care. They are cycling in and out on short-term, symptom-driven offenses, because no upstream system caught them first.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">Jails and prisons did not volunteer for this. They inherited a role created by the collapse of every system that should have acted earlier. The numbers only tell us how heavy that burden has become.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">The Carousel<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">The clearest evidence that this is a design failure &mdash; not a string of individual ones &mdash; lives where homelessness, psychosis, and incarceration meet.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">On any given night, more than 653,000 Americans are homeless, and at minimum one in five &mdash; roughly 137,000 people &mdash; live with an active severe mental illness. Within the unsheltered population specifically, those sleeping on streets and in transit tunnels, people with active psychosis are intensely concentrated. The very symptoms that should trigger care &mdash; paranoia, persecutory delusions, command hallucinations &mdash; are the ones that push people out of shelters or get them excluded entirely.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">Then the loop closes. Between 48 and 67 percent of unhoused people with serious psychiatric illness have been incarcerated at least once. We criminalize the symptoms of an untreated illness, run the person through a jail that cannot treat them, and release them back to the street that produced the crisis. We have built a carousel and called it a system.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">The data tells us it is reversible. Among people with severe psychiatric conditions who fall into prolonged homelessness, more than 63 percent cannot access or maintain medication. Among those placed in stable supportive housing, that figure drops to 18 percent. Housing and continuity are not luxuries layered on top of treatment. They </span><span style="color:rgb(0, 0, 0)">are</span><span style="color:rgb(0, 0, 0)"> treatment. We know what works &mdash; we simply route people away from it.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">What the Numbers Demand<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">It is tempting to read figures like these as a tragedy too vast to touch. They are the opposite. Each one marks a decision point &mdash; a place where the system chose to wait and could have chosen otherwise.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">A jail census that is 44 percent mentally ill is not a fact of nature. It is the predictable output of intervention thresholds set too high, and continuity of care set too low. The carousel of street-to-jail-to-street is not a mystery. It is what happens when we fund crisis containment and starve the continuum of care that would prevent the crisis.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">This is the work the National Shattering Silence Coalition takes up across our 31 state chapters &mdash; replacing a national standard of neglect with a national standard of care. It means moving intervention upstream, treating families as partners rather than obstacles, and building the continuity that turns a stabilized patient into a recovering one instead of tomorrow's repeat booking.<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">These numbers are not an indictment of the people inside the system. They are an indictment of its central assumption &mdash; that it is acceptable to wait. Every figure here is a person who reached a door that should have been open and found it locked.</span></span><br /><span><span style="color:rgb(0, 0, 0)">We already know the cost of waiting. We can count it. The only open question is how much longer we are willing to keep paying it.</span></span></div>  <h2 class="blog-author-title">Author</h2> <p style="text-align:left;">Ann Corcoran, RN, MSN, Executive Director &amp; National Strategist for Medical Accountability, NSSC</p>  <h2 class="wsite-content-title">REFERENCES</h2>  <div class="paragraph" style="text-align:left;">Brain &amp; Behavior Research Foundation. (2018). Homelessness and Mental Illness: A Challenge to Our Society.<br /><br />Bureau of Justice Statistics (BJS). (2021). Indicators of Mental Health Problems Reported by Prisoners and Jail Inmates (NCJ 252643). U.S. Department of Justice.<br /><br />Centers for Disease Control and Prevention (CDC). (2024). National Violent Death Reporting System (NVDRS) Surveillance Summaries.<br /><br />Council of State Governments (CSG) Justice Center. (2020). Mental Health Courts: A National Snapshot and Summary of Multi-Site Evaluations.<br /><br />National Institute of Mental Health (NIMH). (2023). Severe Mental Illness (SMI) Prevalence and Treatment Statistics.<br /><br />Substance Abuse and Mental Health Services Administration (SAMHSA). (2023). Criminal Justice and Mental Health Systems Integration.<br /><br />Substance Abuse and Mental Health Services Administration (SAMHSA). (2024). Current Statistics on the Prevalence and Characteristics of People Experiencing Homelessness in the United States.<br /><br />Treatment Advocacy Center (TAC). (2023). Homelessness and Serious Mental Illness: A National Data Brief Summary. Office of Research and Public Affairs.<br /><br />U.S. Department of Housing and Urban Development (HUD). (2023). The Annual Homeless Assessment Report (AHAR) to Congress. Office of Community Planning and Development.<br />&#8203;<br />World Health Organization &amp; High-Income Countries Research Consortium. (2021). The prevalence of mental disorders among homeless people: An updated systematic review and meta-regression analysis.</div>]]></content:encoded></item><item><title><![CDATA[In Justice, Part 2: The Right to Be Well — Moving Past the Word "Mental" to Save Our Lives]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/in-justice-part-2-the-right-to-be-well-moving-past-the-word-mental-to-save-our-lives]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/in-justice-part-2-the-right-to-be-well-moving-past-the-word-mental-to-save-our-lives#comments]]></comments><pubDate>Mon, 08 Jun 2026 22:26:16 GMT</pubDate><category><![CDATA[anosognosia]]></category><category><![CDATA[bipolar disorder]]></category><category><![CDATA[In Justice]]></category><category><![CDATA[Involuntary Treatment]]></category><category><![CDATA[SMI Peer Alliance]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/in-justice-part-2-the-right-to-be-well-moving-past-the-word-mental-to-save-our-lives</guid><description><![CDATA[       In this piece: NSSC Senior VP Kerry Martin shares a raw, unfiltered look at surviving Bipolar I psychosis, exposing how the catastrophic division between mental and physical health has normalized the state-sanctioned abandonment of our most vulnerable. Backed by hard forensic data and personal survival, this essay issues a powerful call to shatter the current Standard of Neglect and replace it with a true National Standard of Care that treats no-fault brain disease with the dignity of any [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:30px;margin-left:0px;margin-right:0px;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/kerry-martin-mpp-bipolar-i-survivor-nssc-senior-vpt_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="paragraph" style="text-align:left;"><em><span><span style="color:rgb(31, 31, 31); font-weight:700">In this piece:</span><span style="color:rgb(31, 31, 31)"> NSSC Senior VP Kerry Martin shares a raw, unfiltered look at surviving Bipolar I psychosis, exposing how the catastrophic division between mental and physical health has normalized the state-sanctioned abandonment of our most vulnerable. Backed by hard forensic data and personal survival, this essay issues a powerful call to shatter the current Standard of Neglect and replace it with a true National Standard of Care that treats no-fault brain disease with the dignity of any other medical emergency.</span></span></em><br /><br /><span><span style="color:rgb(31, 31, 31)">As my colleague Carmen Facciolo recently laid bare in the <a href="https://www.nationalshatteringsilencecoalition.org/blog/we-cannot-keep-waiting-for-crisis-why-mental-health-reform-is-public-safety-reform" target="_blank">opening installment</a> of our In Justice series, America does not possess a psychiatric treatment system for those with severe mental illness (SMI). We possess a crisis containment system. We have designed a bureaucratic system that intentionally waits for a human to be in crisis before it will offer a shred of medical help.</span></span><br /><span><span style="color:rgb(31, 31, 31)">.</span></span><br /><span><span style="color:rgb(31, 31, 31)">But while policy experts, legislative committees, and institutional gatekeepers debate the philosophical nuances of civil liberties, my SMI brothers and sisters are paying for those theories with their lives. They are paying for them on freezing sidewalks, in overcrowded emergency rooms, and inside concrete jail cells.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">I have sat before legislative committees and said what most in the advocacy space are too terrified to whisper: <em>"Please, take away my rights if I ever lose my mind again&mdash;because I don&rsquo;t want to die; I want to live."</em></span></span></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span style="color:rgb(31, 31, 31); font-weight:700">Myth of Autonomy: Left Behind on the Street Corner</span><br /><br /><span><span style="color:rgb(31, 31, 31)">&#8203;I write these words not as an academic observer, but as a survivor of Bipolar I who has lived through the terrors of active psychosis. And I am going to tell you a raw, unfiltered truth that is incredibly difficult to disclose because of the crushing weight of societal stigma: My psychosis was triggered and accelerated by substance use.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Years ago, I was encountered by law enforcement while visibly psychotic, delusional, and intoxicated. Because I had not yet crossed the narrow imminent danger threshold required by our broken legal standards, the law barred those officers from intervening. The system forced them to leave me behind.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Think about the absolute absurdity of this design: we have mandated that police officers&mdash;who are not psychiatrists and are not trained in clinical diagnostics&mdash;must act as the frontline arbiters of a medical threshold. We have forced law enforcement to make complex neurobiological determinations that belong in a hospital, not on a street corner.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">The state strictly demanded that we wait for a catastrophe. Because of that sanitized, legally mandated delay, I later tried to take my own life.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">I survived that void through sheer, terrifying luck and the economic stamina of a middle-class family who acted as a human shield against a broken system. But survival should not be a genetic lottery. Navigating a medical crisis shouldn't demand that a family possess an elite educational background or a financial runway just to fight weaponized privacy walls.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">When opponents fight structural legislative backstops like California&rsquo;s SB 1016 or Massachusetts&rsquo; S.2973 (The Continuum of Care Act) under the banner of protecting civil liberties and self-determination, I am forced to demand an answer to the ultimate question:&nbsp;</span></span><em><span><span style="color:rgb(31, 31, 31); font-weight:700">"Where is the liberty in an early grave? Where is the self-determination in a tent on Broadway or a cell in a county jail?"</span></span></em><br /><br /><span><span style="color:rgb(31, 31, 31)">To offer someone absolute "freedom" while their brain is suffering from a stage-four medical emergency isn't compassion. It is a sanitized, state-sanctioned form of abandonment. For decades, our nation has fiercely protected a </span><span style="color:rgb(31, 31, 31)">Right to be Sick</span><span style="color:rgb(31, 31, 31)">, while systematically ignoring the fundamental </span><span style="color:rgb(31, 31, 31)">Right to be Well</span><span style="color:rgb(31, 31, 31)">.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Co-Occurring Disorders: Institutional Game of Hot Potato</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">When co-occurring disorders surface, this broken system collapses entirely into a game of institutional passing-the-buck. </span><span style="color:rgb(31, 31, 31)">It is deeply uncomfortable to admit to histories of alcohol and cannabis abuse. We live in a culture that weaponizes addiction, using it as an excuse to say, </span><span style="color:rgb(31, 31, 31)">"Well, they did this to themselves."</span><span style="color:rgb(31, 31, 31)">&nbsp;</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">But breaking the silence is a non-negotiable part of the conversation if we ever want to fix our broken laws. If we don&rsquo;t talk about co-occurring illness honestly, we are leaving the sickest among us behind.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Locked in the agonizing early stages of psychosis, I turned to alcohol and cannabis to quiet the noise and numb the pain. Like millions of others caught in a neurobiological crisis, I didn't know I was pouring gasoline on a biological fire.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">America's psychiatric infrastructure completely refuses to treat co-occurring disorders simultaneously. We have drawn an imaginary, bureaucratic line between addiction and severe neurobiological illness. While an acute psychiatric ward will admit someone under the influence, they routinely discharge them the moment the immediate crisis drops below the legal hold threshold.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">But when that individual tries to enter a substance use rehab or a detox facility to address the underlying addiction, the doors are slammed shut. Traditional rehab networks completely refuse to accept or accommodate individuals with Severe Mental Illness who are actively symptomatic or struggling with medication compliance.<br />&#8203;</span></span><br /><span><span style="color:rgb(31, 31, 31)">The system shuffles vulnerable human beings back and forth like cargo between networks that refuse to coordinate, leaving the sickest among us completely stranded in the gap.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Timeline of Systemic Failure</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">My perspective was forged by over thirty years of navigating a system that often feels explicitly engineered to fail the individual.</span></span><ul><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31); font-weight:700">1992 (The Ivy League Void):</span><span style="color:rgb(31, 31, 31)"> While a graduate student at Harvard, I reached out for help during a crisis and poured my heart out to a resident clinician at the university&rsquo;s mental health clinic. I walked back to my apartment, only to receive a phone call from her stating, "I don&rsquo;t think I can help you." Following a suicide attempt born directly of that clinical abandonment, I woke up under the blinding emergency room lights of a Cambridge hospital. A nurse looked down at me and said, "Lay still, you did this to yourself."</span></span></li><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31); font-weight:700">The California Cycle:</span><span style="color:rgb(31, 31, 31)"> Years later, after graduating, the cycle repeated. My sister found me soaking in backyard sprinklers following a suicide attempt during a profound psychotic break. This incident occurred exactly one month after local police had refused to detain me for clinical treatment because I wasn't dangerous enough yet under the imminent danger standard.</span></span><br /><br /></li></ul> <span><span style="color:rgb(31, 31, 31)">Following these crises, I became a permanent prisoner of medical bureaucracy. I was boarded on ER gurneys for days, only to be moved by ambulance like cargo at 4:00 AM because an administrator needed the bed. I eventually learned to expertly lie to psychiatric evaluators just to escape a process that offered nothing but a glossy brochure and a discharge paper.<br /><br />From the ivy-covered walls of Harvard to the sterile tiles of the ER, the message from society has been unshakeable: Wait for tragedy, then blame the victim.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Anosognosia Pipeline: Off the Edge of the Neurological Cliff</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">When we honor treatment refusal during active psychosis as an exercise of "autonomy," we are participating in a structural illusion. The fundamental crisis of our advocacy movement is that we introduced the word "mental" and went straight off a physical cliff.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Severe Mental Illness is not a behavioral problem, a spiritual journey, or a collection of eccentric lifestyle choices. It is a physical, no-fault biological brain disease. But because the law treats it as a "mental" issue separate from physical health, we have created a standard of law that is literally killing us.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">As board-certified forensic psychiatrist and NSSC Board Member Dr. David Hager recently laid bare in Psychiatric Times</span><span style="color:rgb(31, 31, 31)">, poor illness insight is a ubiquitous neurological deficit known as anosognosia. An individual with schizophrenia and anosognosia has a reduced capacity to participate in informed consent. They are neurologically unable to recognize the need for treatment, yet our civil mental health system is built on informed consent and patient autonomy&mdash;a framework that presumes the very capacity their illness has taken from them [1].</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Dr. Henry A. Nasrallah, Editor-in-Chief of Current Psychiatry</span><span style="color:rgb(31, 31, 31)">, establishes that anosognosia is fundamentally a disorder of consciousness&mdash;a metacognitive deficit driven by structural abnormalities and localized gray matter loss within the brain's right hemisphere and bilateral insula [2]. This is not a rare clinical anomaly; it is a pervasive, defining baseline of severe brain disorders. Multi-site epidemiological data reveals that anosognosia is present in an overwhelming </span><span style="color:rgb(31, 31, 31); font-weight:700">57% to 98%</span><span style="color:rgb(31, 31, 31)"> of patients suffering from psychiatric psychoses [2].</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">&#8203;</span></span><span><span style="color:rgb(31, 31, 31)">Beyond my own survival, I have stood on the front lines of this crisis as a Certified Peer Support Specialist on an Assertive Community Treatment (ACT) team in San Diego. I have walked our streets and looked into the eyes of my SMI brothers and sisters rotting with their boots on. I have been the one offering a clinical hand and the physical keys to free, permanent housing&mdash;only to have those life-saving offers flatly turned away.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Why would a human being choose a freezing concrete sidewalk over a warm, safe bed?<br />&#8203;</span></span><br /><span><span style="color:rgb(31, 31, 31)">It is not a lifestyle choice. It is a genuine neurological deficit in self-awareness located in the brain's right hemisphere [3]. When we grant unbridled autonomy to an individual in the depths of a psychotic break or a manic surge who lacks all insight into their condition, we are not giving them freedom. We are handing a blind person a map to a cliff and telling them it is their civil right to walk off the edge.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">We would never take an individual suffering from advanced Alzheimer&rsquo;s or dementia, stand them before a judge, and expect them to execute a complex social contract or accept voluntary medical care [4]. We universally recognize that their organ is failing them, and we step in with compassionate, surrogate, structure-driven decision-making.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">The operational outcome of treating this neurological blindness as a mental choice is entirely predictable. Bound by voluntary, consent-based service models, the civil outpatient clinic simply closes the case file of a psychotic patient who misses an appointment and drops them from the caseload.</span></span><br /><br /><strong><span><span style="color:rgb(31, 31, 31)">The system waits for blood to be shed.</span></span></strong><br /><br /><span><span style="color:rgb(31, 31, 31)">An estimated 77,000 individuals with psychotic disorders are currently warehoused in American jails and prisons&mdash;nearly three times the number of individuals in state psychiatric hospitals [5]. Meanwhile, over half of our nation&rsquo;s remaining state psychiatric beds are completely occupied by forensic patients because the civil safety net collapsed upstream. We have structurally mandated that a jail cell is the only waiting room left to see a doctor.&nbsp;</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Families are left asking the ultimate, haunting question: <em>"Why does a loved one have to commit a felony just to get admission to a hospital?"</em></span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Checklist of Abandonment: The Injustices We Endure</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">When we strip away the sanitized legalese and look at the actual reality of our healthcare landscape, the current system enforces three foundational injustices against my SMI community. Like all human beings, we deserve to have this broken architecture dismantled and replaced with the unshakeable <a href="https://www.nationalshatteringsilencecoalition.org/nssc-strategic-roadmap-white-paper-series.html" target="_blank">National Standard of Care</a>&nbsp;our coalition champions:</span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Injustice 1: Linguistic Deception (Mental vs. Physical)</span></span><ul><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">The Reality:</span><span style="color:rgb(31, 31, 31)"> By labeling severe neurobiological brain disorders as mental&nbsp;issues rather than physical organ failures, the law has stepped off a dangerous cliff. This artificial division allows the state to protect a person's civil right&nbsp;to slowly die untreated on a public sidewalk.</span></span></li><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">Our National Standard of Care:</span><span style="color:rgb(31, 31, 31)"> We must legally classify Severe Mental Illness as a physical, no-fault medical emergency. Psychosis must trigger the exact same mandatory, compassionate, and immediate diagnostic and treatment protocols given to a patient presenting with an acute stroke or advanced dementia.</span></span><br /><br /></li></ul> <span><span style="color:rgb(31, 31, 31); font-weight:700">Injustice 2: Autonomy Trap (Anosognosia as a Choice)</span></span><ul><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">The Reality:</span><span style="color:rgb(31, 31, 31)"> The civil outpatient system uses voluntary, consent-based service models for individuals who are actively blind to their own condition due to anosognosia. When a symptomatic individual fails to participate in a voluntary contract, the system simply closes their file and walks away.</span></span></li><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">Our National Standard of Care:</span><span style="color:rgb(31, 31, 31)"> We must mandate clinical accountability. When an individual lacks the structural capacity to participate in informed consent, the healthcare system cannot be permitted to abandon them. The law must compel continuous, community-based clinical engagement and trauma-informed support</span></span></li></ul><br /><span><span style="color:rgb(31, 31, 31)">&#8203;</span></span><span><span style="color:rgb(31, 31, 31); font-weight:700">Injustice 3: Forensic Waiting Room (Jails as Hospitals)</span></span><ul><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">The Reality:</span><span style="color:rgb(31, 31, 31)"> Because the criteria for civil medical intervention are kept impossibly high, the state has structurally mandated that a jail cell is the only waiting room left to see a doctor. We force families to watch their loved ones commit a felony before the state will grant them access to a psychiatric hospital bed.</span></span></li><li style="color:rgb(0, 0, 0)"><span><span style="color:rgb(31, 31, 31)">Our National Standard of Care:</span><span style="color:rgb(31, 31, 31)"> We must fund and build a proactive, community-based continuum of care that intervenes during the early, manageable stages of neurobiological deterioration, ensuring that a medical team&mdash;not a police officer or a correctional guard&mdash;is the arbiter of recovery.</span></span></li></ul><br /><span><span style="color:rgb(31, 31, 31)">This disparity reflects a deeper, more insidious cultural crime: the total erasure of our humanity. When a person&rsquo;s heart begins to fail, society does not look at them and say, </span><span style="color:rgb(31, 31, 31)">'There goes a walking heart attack.'</span><span style="color:rgb(31, 31, 31)"> They do not define their entire moral character, their intellect, or their soul by their cardiac arrest. They see a human being fighting a failing organ, and they rush to offer medical grace.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Yet, when the failing organ is the brain, our humanity is instantly stripped away. We are no longer humans fighting an emergency; we are defined entirely by our illness. We become our diagnoses. I am not a walking case of Bipolar I. I am a policy professional, a strategist, a sister, a daughter, and a human being who survived a stage-four physical organ failure. We deserve the exact same medical grace, the exact same standard of care, and the exact same basic human dignity accorded to every other patient on this earth.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31); font-weight:700">Claim Your Position: Join Our SMI Peer Alliance</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">Those of us who live with severe brain disorders are no longer content to have our lives debated by academic theorists or sidelined by legislative committees. True systemic transformation cannot happen </span><span style="color:rgb(31, 31, 31)">about</span><span style="color:rgb(31, 31, 31)"> us without us. The time for passive observation is over.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">My fellow peers, the most profound insights into the SMI crisis do not come from textbooks&mdash;they come from the scars of the front lines. It is time to stop screaming into the void alone. It is time to turn our ground-truth into unassailable systemic power.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">The politicians are not coming to save us. The bureaucratic committees are not going to vote our suffering away. The power to shatter this Standard of Neglect belongs to us, and it begins when we stand together as one undeniable voice.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">If you are living with an SMI diagnosis and you are fed up with watching our community warehoused in jail cells and left under public sidewalks, claim your position with us today. Bring your lived experience to the table, and let&rsquo;s build the national movement our 22 million invisible brothers and sisters deserve. Together, we will move humanity forward.<br /><br />Join us&nbsp;<a href="https://www.nationalshatteringsilencecoalition.org/peeralliancenetwork.html" target="_blank">HERE</a>.</span></span><br /><br /><span><span style="color:rgb(31, 31, 31)"><strong>REFERENCES AND FOOTNOTES</strong></span></span><br /><br /><span><span style="color:rgb(31, 31, 31)">[1] Hager, D. (2026). Anosognosia and the Criminalization of Schizophrenia: Implications for Clinical Practice. </span><span style="color:rgb(31, 31, 31)">Psychiatric Times</span><span style="color:rgb(31, 31, 31)">. Available at: </span><span style="color:rgb(31, 31, 31)"><a href="https://www.psychiatrictimes.com/view/anosognosia-and-the-criminalization-of-schizophrenia-implications-for-clinical-practice" target="_blank">https://www.psychiatrictimes.com/view/anosognosia-and-the-criminalization-of-schizophrenia-implications-for-clinical-practice</a></span></span><br /><span><span style="color:rgb(31, 31, 31)">[2] Nasrallah, H. A. (2022). From the Editor: Is anosognosia a delusion, a negative symptom, or a cognitive deficit? </span><span style="color:rgb(31, 31, 31)">Current Psychiatry</span><span style="color:rgb(31, 31, 31)">, 21(1), 7-8, 14. doi:10.12788/cp.0210; Judicial Council of California (2024-2025 CARE Act Quarterly Reports).</span></span><br /><span><span style="color:rgb(31, 31, 31)">[3] Leach, R., Fisher, A. (2023). Anosognosia and Bipolar I: The Right Hemisphere Neurological Deficit. </span><span style="color:rgb(31, 31, 31)">Treatment Advocacy Center</span><span style="color:rgb(31, 31, 31)">.</span></span><br /><span><span style="color:rgb(31, 31, 31)">[4] Medical News Today. (2024). Anosognosia: Symptoms, causes, and treatment.</span></span><br /><span><span style="color:rgb(31, 31, 31)">[5] Fuller, D. A., et al. (2024). The Jail-to-Hospital Ratio: A National Crisis. </span><span style="color:rgb(31, 31, 31)">Treatment Advocacy Center</span><span style="color:rgb(31, 31, 31)">; National Alliance on Mental Illness (NAMI.org).</span></span></div>  <h2 class="blog-author-title"><font size="5">Author</font></h2> <p>Kerry Martin, MPP, <a href="https://www.nationalshatteringsilencecoalition.org/nsscboardmember_kerrymartin.html" target="_blank">NSSC Senior Vice President</a> of Strategy &amp; Impact, Board Member, Peer Support Specialist &amp; Bipolar I Survivor</p>]]></content:encoded></item><item><title><![CDATA[abandoned in plain sight]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/abandoned-in-plain-sight]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/abandoned-in-plain-sight#comments]]></comments><pubDate>Mon, 01 Jun 2026 21:44:47 GMT</pubDate><category><![CDATA[anosognosia]]></category><category><![CDATA[homelessness]]></category><category><![CDATA[Neglect Costs]]></category><category><![CDATA[psychosis]]></category><category><![CDATA[Treatment Saves]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/abandoned-in-plain-sight</guid><description><![CDATA[         In Loving Memory of Melissa Cavallieri &mdash; As Told by Her Sister, Maria VargasMelissa Cavallieri was deeply loved by her family. But during her struggle with serious mental illness, the system meant to help her failed again and again.Over the course of several years, Melissa was repeatedly hospitalized, only to be discharged without meaningful follow-up care or continuity of treatment. For the final three years of her life, she cycled through a system that never established a clear  [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/melissa-maria_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="wsite-spacer" style="height:34px;"></div>  <div class="paragraph"><em><strong><span style="color:rgb(0, 0, 0)"><span>In Loving Memory of Melissa Cavallieri &mdash; As Told by Her Sister, Maria Vargas</span></span></strong></em><br /><br /><span style="color:rgb(0, 0, 0)"><span>Melissa Cavallieri was deeply loved by her family. But during her struggle with serious mental illness, the system meant to help her failed again and again.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span>Over the course of several years, Melissa was repeatedly hospitalized, only to be discharged without meaningful follow-up care or continuity of treatment. For the final three years of her life, she cycled through a system that never established a clear diagnosis or addressed the root of her illness. Her </span><span style="font-weight:700">anosognosia &mdash; the inability to recognize her illness &mdash; was overlooked</span><span>, even when she refused critical post-operative medical care.</span></span><br /><br /><span style="color:rgb(0, 0, 0)"><span>As Melissa&rsquo;s physical and mental health declined, she was placed in a residential facility in the Bronx that had </span><span style="font-weight:700">no psychiatric support</span><span>. Supervision was inadequate. In March 2024, despite her deteriorating condition, Melissa was allowed to sign herself out of the facility and walk away.<br />&#8203;</span></span><br /><span style="color:rgb(0, 0, 0)"><span>Soon after, a suitcase containing her belongings was discovered abandoned on the street.</span></span><br /></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph">For months, Melissa lived on the unforgiving streets of New York City. She contacted her family only a handful of times. Despite the uncertainty and fear, her sister Maria never lost hope that Melissa could still be found and helped.<br /><br />As winter approached and temperatures dropped, Maria walked the streets of midtown Manhattan searching for her sister. Each day began with the same heartbreaking routine &mdash; calling hospitals, visiting police stations, and checking with the City Medical Examiner&rsquo;s Office in the desperate hope that Melissa might still be alive.<br /><br />Weeks passed with no answers.<br /><br />Then, on January 24, 2025, Maria made a devastating discovery. While searching the Medical Examiner&rsquo;s website, she found her sister&rsquo;s name listed among the unidentified and unclaimed.<br /><br />Melissa had died more than a month earlier, on December 18, 2024.<br /><br />Her death certificate listed the cause of death as a fentanyl overdose. But Maria believes the true cause was the systemic neglect of her sister&rsquo;s untreated serious mental illness.<br />Melissa&rsquo;s story is a heartbreaking example of what happens when people with severe brain illnesses are left without consistent treatment, support, or protection. Tragedy can occur when they are too sick to understand they need help.<br /><br />Her death did not have to happen.<br /><br />At the National Shattering Silence Coalition, we believe Melissa&rsquo;s life matters &mdash; and that her story must be told so that others do not suffer the same fate. Treatment saves lives. Neglect costs lives.<br /><br /><br /><em>Melissa&rsquo;s death was not only a heartbreaking personal loss &mdash; it was also the result of a system that repeatedly failed to provide the treatment she needed. Allowing someone with untreated serious mental illness to cycle through hospitals, residential programs, homelessness, and emergency systems carries enormous costs. In New York City, a single year of homelessness combined with emergency medical services, hospitalizations, police response, and medical examiner investigations can easily exceed $100,000&ndash;$150,000 in taxpayer-funded services per person. Yet the cost of consistent psychiatric treatment and supportive care is often a fraction of that amount. Melissa&rsquo;s story is a tragic reminder that neglect costs far more than treatment ever would &mdash; in public dollars, in shattered families, and ultimately in human lives. Her life mattered, and with proper care, her story could have ended very differently.</em><br /></div>]]></content:encoded></item><item><title><![CDATA[We Cannot Keep Waiting for Crisis: Why Mental Health Reform Is Public Safety Reform]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/we-cannot-keep-waiting-for-crisis-why-mental-health-reform-is-public-safety-reform]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/we-cannot-keep-waiting-for-crisis-why-mental-health-reform-is-public-safety-reform#comments]]></comments><pubDate>Thu, 21 May 2026 12:27:09 GMT</pubDate><category><![CDATA[anosognosia]]></category><category><![CDATA[AOT]]></category><category><![CDATA[Assisted Outpatient Treatment]]></category><category><![CDATA[Criminal Justice]]></category><category><![CDATA[In Justice]]></category><category><![CDATA[Involuntary Treatment]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/we-cannot-keep-waiting-for-crisis-why-mental-health-reform-is-public-safety-reform</guid><description><![CDATA[       A recent interview on Newsmax with former Congressman, mental health advocate, and NSSC Policy Advisor Dr. Tim Murphy put into words what families, clinicians, law enforcement officers, and advocates have long known: America's mental health system too often arrives only after tragedy.The pattern is familiar. A person shows escalating signs of psychiatric crisis. Family members plead for help. Systems respond that intervention thresholds have not been met. And the public conversation begin [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:30px;margin-left:0px;margin-right:0px;text-align:center"> <a href='https://www.youtube.com/watch?v=4MxODGZwF-0' target='_blank'> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/timmurphynewsinterview_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div class="paragraph"><span style="color:rgb(0, 0, 0)">A recent interview on Newsmax with former Congressman, mental health advocate, and NSSC Policy Advisor Dr. Tim Murphy put into words what families, clinicians, law enforcement officers, and advocates have long known: America's mental health system too often arrives only after tragedy.</span><br /><br /><span style="color:rgb(0, 0, 0)">The pattern is familiar. A person shows escalating signs of psychiatric crisis. Family members plead for help. Systems respond that intervention thresholds have not been met. And the public conversation begins only after an arrest, a hospitalization, a violent encounter, or a death.</span><br /><br /><span style="color:rgb(0, 0, 0)">We keep asking the wrong question.</span><br /><span style="color:rgb(0, 0, 0)">Not:&nbsp;How did we miss the warning signs?<br />&#8203;</span><span style="color:rgb(0, 0, 0)">But:&nbsp;Why do we keep building systems that require catastrophe before they respond?</span><br /><br /><span style="color:rgb(0, 0, 0)"><span style="font-weight:700">A False Choice Between Liberty and Care</span></span></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(0, 0, 0)">For decades, mental health policy has been shaped by a tension between civil liberties and intervention standards. Protecting individual rights matters &mdash; deeply and non-negotiably. But somewhere in that debate, America created a false choice between liberty and care.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Families describe the same cycle, in city after city. A loved one begins deteriorating. Paranoia sets in. They withdraw from treatment or lose insight into their condition. Family members call hospitals, crisis lines, providers, and law enforcement. The answer is almost always the same &mdash; nothing can be done until the person poses an imminent danger to themselves or others.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">By then, the only systems available are the least therapeutic ones.</span></span><br /><span><span style="color:rgb(0, 0, 0)">Emergency rooms. Jails. Police encounters. Courtrooms. Prisons.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">That is not a treatment system. That is crisis containment. And crisis containment is extraordinarily expensive &mdash; financially, morally, and in human lives.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">Systems That Inherited a Problem They Were Never Designed to Solve</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Police departments did not volunteer to become the nation's primary mental health responders. Correctional facilities did not design themselves as treatment centers. These institutions inherited a role created by the collapse of every upstream system that should have acted first.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The consequences are predictable. Officers encounter people in acute psychiatric crisis under dangerous, high-pressure circumstances with few good options. Emergency departments cycle individuals through short-term stabilization with no continuity of care. Families exhaust themselves navigating fragmented systems while advocating for people who cannot always advocate for themselves. Communities watch the same crises repeat, year after year.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">And then we act surprised when incidents like the shooting in Cambridge (MA) or the Subway Shoving (New York City) a few weeks ago happen.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">This is not a failure of individuals. It is a failure of design.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Untreated severe mental illness frequently intersects with homelessness, repeated emergency room use, family destabilization, victimization, and justice-system involvement. Law enforcement officers increasingly function as de facto first responders for behavioral health emergencies &mdash; a role they never trained for and were never meant to carry. The downstream impact reaches every corner of society, and the cost is measured not only in dollars but in lives derailed, families fractured, and communities left managing preventable crises without adequate tools.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">What Earlier Intervention Actually Requires</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">If the goal is genuinely reducing criminal justice involvement, focusing on what happens after police contact is far too late. Prevention requires moving intervention upstream &mdash; before psychiatric crisis becomes a criminal justice event.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">That means rethinking several long-standing assumptions.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Treatment systems must prioritize earlier action rather than waiting for deterioration to cross emergency thresholds. Delayed care rarely produces easier recoveries. It produces more complicated ones, and more suffering along the way.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Families must be recognized as partners, not obstacles. Relatives who witness obvious decline are too often excluded from systems they are simultaneously expected to support. That exclusion is both clinically counterproductive and morally indefensible.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Continuity must replace the revolving door. Short-term stabilization without sustained treatment planning simply returns people to the same conditions that produced the crisis in the first place. Cycling individuals through emergency departments and inpatient units without long-term care coordination does not treat illness &mdash; it manages symptoms until the next crisis arrives.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Healthcare and public safety systems must stop operating as parallel structures that rarely communicate. Coordinated crisis response, diversion pathways, data-sharing, and community partnerships are not aspirational add-ons. They are preconditions for meaningful reform.<br /><br />Every preventable psychiatric crisis that becomes a law enforcement incident reflects a missed opportunity somewhere upstream and closing that gap requires these systems to work together rather than in isolation.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">Compassion Is Not Waiting</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">There is a persistent misconception that intervening earlier somehow threatens individual dignity or autonomy. It does not &mdash; if the intervention is built on care rather than control.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Compassion is not standing by while someone deteriorates to the point of homelessness, incarceration, or irreversible harm. Compassion is not waiting for a loved one to become a danger before the system will acknowledge their suffering.<br /><br />&#8203;Compassion is building systems capable of recognizing pain before it becomes a catastrophe &mdash; and responding with treatment, support, and dignity rather than handcuffs and holding cells.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Public safety and mental health are routinely treated as separate policy conversations. They are not. Every family left without options represents a systems failure. Every justice-system encounter rooted in untreated illness should force the same question: what should have happened months or years earlier, and why didn't it?</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The goal is not coercion for its own sake. The goal is a national standard of care that values timely treatment, family partnership, sustained recovery, and human dignity &mdash; one that measures success not by how efficiently we manage crisis, but by how rarely crisis becomes the only option left.<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">Because if America keeps waiting for a crisis before offering care, we should not be surprised when a crisis is exactly what we continue to get.</span></span></div>  <div style="text-align:center;"><div style="height: 0px; overflow: hidden;"></div> <a class="wsite-button wsite-button-large wsite-button-highlight" href="https://www.youtube.com/watch?v=4MxODGZwF-0" target="_blank"> <span class="wsite-button-inner">WATCH TIM MURPHY'S INTERVIEW</span> </a> <div style="height: 10px; overflow: hidden;"></div></div>  <div class="wsite-spacer" style="height:50px;"></div>  <h2 class="blog-author-title">Author</h2> <p><em>Carmen Facciolo, Senior Vice President of Clinical and External Affairs, <a href="https://www.nationalshatteringsilencecoalition.org/" target="_blank">National Shattering Silence Coalition</a></em></p>]]></content:encoded></item><item><title><![CDATA[devastating Consequences]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/devastating-consequences]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/devastating-consequences#comments]]></comments><pubDate>Thu, 14 May 2026 12:33:29 GMT</pubDate><category><![CDATA[family]]></category><category><![CDATA[hospitalization]]></category><category><![CDATA[Neglect Costs]]></category><category><![CDATA[Recovery Story]]></category><category><![CDATA[schizophrenia]]></category><category><![CDATA[serious brain disorders]]></category><category><![CDATA[serious brain illness]]></category><category><![CDATA[serious mental illness]]></category><category><![CDATA[Treatment Saves]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/devastating-consequences</guid><description><![CDATA[           My daughter Christina was a bright, kind young woman&mdash;a college graduate with a degree in sociology from UC Santa Cruz. She was smart, hardworking, and had no history of violence or criminal behavior. But like many families, we did not fully understand the severity of her mental illness until it was too late.After leaving home for college, Christina began struggling with her mental health. Two years before the tragedy, she was placed on a three-day psychiatric hold for what docto [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/sonia-nssc-post-image_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph"><span><span style="color:rgb(0, 0, 0)">My daughter Christina was a bright, kind young woman&mdash;a college graduate with a degree in sociology from UC Santa Cruz. She was smart, hardworking, and had no history of violence or criminal behavior. But like many families, we did not fully understand the severity of her mental illness until it was too late.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">After leaving home for college, Christina began struggling with her mental health. Two years before the tragedy, she was placed on a three-day psychiatric hold for what doctors described as &ldquo;mania.&rdquo; She briefly saw a psychiatrist and was prescribed medication. However, despite experiencing delusions and auditory hallucinations, she was never clearly diagnosed with schizophrenia.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">In 2010, Christina moved in with her father while preparing for nursing school. She excelled at first, earning straight A&rsquo;s, but soon began failing tests and struggling to sleep. She was being treated for anxiety, but her symptoms worsened. She spoke rapidly, acted frantically, and her behavior became increasingly concerning.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The night before tragedy struck, we had agreed that Christina would move to live with me in Mount Shasta, where life was quieter, and I could help support her. She planned to see her psychiatrist the next morning to adjust her medication before making the four-hour drive.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">That night, Christina&rsquo;s untreated psychosis spiraled out of control. She believed she was being followed, that voices from the FBI or CIA were coming through her car, and that she had to stop a catastrophic world event. In the grip of severe psychosis, she entered her father&rsquo;s room intending to harm herself. Instead, responding to commanding voices she could not control, she shot and killed her father.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Christina loved her dad deeply. The tragedy was the result of untreated severe mental illness&mdash;not drugs or criminal intent.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">She was arrested after being found the next day in a park in Oakland, in a severe psychotic state. After evaluation, multiple mental health professionals determined that Christina had schizophrenia. She ultimately pled guilty and was found not guilty by reason of insanity, and in 2011 she was committed to Napa State Hospital.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">With proper treatment and antipsychotic medication, Christina stabilized. She spent several years receiving treatment and was released in 2016 into a conditional release program. Since leaving the hospital, Christina has made a remarkable recovery. She completed a master&rsquo;s degree in clinical counseling and has worked full-time in a mental health facility for the past four years. She takes her medication consistently and continues to see a psychiatrist regularly. Christina has not experienced another psychotic episode since the tragedy. Today, she understands her illness and remains deeply committed to maintaining her stability and living a healthy, productive life.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">While Christina has a second chance at life because she finally received treatment, our family was forever changed. Mental illness fractured relationships and left deep grief in its wake.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Christina&rsquo;s story is a painful reminder that when severe mental illness goes untreated, the consequences can be devastating for individuals, families, and communities.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">But it also shows something equally important: treatment works.</span></span><br /><br />&#8203;</div>  <div><div style="height: 20px; overflow: hidden; width: 100%;"></div> <hr class="styled-hr" style="width:100%;"></hr> <div style="height: 20px; overflow: hidden; width: 100%;"></div></div>  <div class="paragraph"><em><span><span style="color:rgb(0, 0, 0)">Christina&rsquo;s story also reflects the enormous financial cost of failing to treat severe mental illness early. The police investigation, court proceedings, incarceration while awaiting placement, years of treatment at Napa State Hospital, and ongoing supervision through California&rsquo;s conditional release program likely cost taxpayers </span><span style="color:rgb(0, 0, 0); font-weight:700">hundreds of thousands of dollars</span><span style="color:rgb(0, 0, 0)">. A single year at a state psychiatric hospital like Napa can exceed </span><span style="color:rgb(0, 0, 0); font-weight:700">$300,000 per patient</span><span style="color:rgb(0, 0, 0)">, and the costs of investigation, prosecution, jail time, and long-term legal supervision add significantly more.&nbsp;</span></span></em><br /><span></span><br /><em><span><span style="color:rgb(0, 0, 0)">In contrast, early diagnosis, consistent outpatient treatment, and coordinated care would have cost a fraction of that amount&mdash;and could have prevented an unimaginable tragedy. Christina&rsquo;s story is a powerful reminder that </span><span style="color:rgb(0, 0, 0); font-weight:700">timely treatment not only saves taxpayer dollars, it also saves lives and families.</span></span></em><br /><span></span><br /></div>]]></content:encoded></item><item><title><![CDATA[I Am Living Proof]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/i-am-living-proof]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/i-am-living-proof#comments]]></comments><pubDate>Sun, 26 Apr 2026 14:09:30 GMT</pubDate><category><![CDATA[advocacy]]></category><category><![CDATA[family]]></category><category><![CDATA[hospitalization]]></category><category><![CDATA[mental health]]></category><category><![CDATA[psychosis]]></category><category><![CDATA[Recovery Story]]></category><category><![CDATA[schizoaffective]]></category><category><![CDATA[serious mental illness]]></category><category><![CDATA[Treatment Saves]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/i-am-living-proof</guid><description><![CDATA[           I am living proof that early and continuous medical care for serious mental illness is not only humane &mdash; it is fiscally responsible.There was a time when I could have easily become another statistic in the criminal system. Instead, I became a taxpayer, educator, mother, and advocate. The difference was timely treatment.The Cost of Care vs. The Cost of CriminalizationYears ago, I documented the financial impact of my illness to better understand the broader policy implications. T [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/ashley-grill-nssc-post-image_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph" style="text-align:left;"><span><span style="color:rgb(0, 0, 0)">I am living proof that early and continuous medical care for serious mental illness is not only humane &mdash; it is fiscally responsible.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">There was a time when I could have easily become another statistic in the criminal system. Instead, I became a taxpayer, educator, mother, and advocate. The difference was timely treatment.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><u><strong>The Cost of Care vs. The Cost of Criminalization</strong></u></span></span><br /><span><span style="color:rgb(0, 0, 0)">Years ago, I documented the financial impact of my illness to better understand the broader policy implications. The numbers were striking.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">In 2012 dollars, the estimated annual cost of criminalization for someone like me would have been approximately </span><span style="color:rgb(0, 0, 0); font-weight:700">$35,071 per year</span><span style="color:rgb(0, 0, 0)">, plus at least </span><span style="color:rgb(0, 0, 0); font-weight:700">$25,000 in lost annual tax revenue</span><span style="color:rgb(0, 0, 0)">. That is roughly </span><span style="color:rgb(0, 0, 0); font-weight:700">$50,000 more per year</span><span style="color:rgb(0, 0, 0)"> than the cost of appropriate medical treatment.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">By contrast, my annual medical, dental, and mental health care costs in 2012 were approximately </span><span style="color:rgb(0, 0, 0); font-weight:700">$10,000</span><span style="color:rgb(0, 0, 0)">.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The math is simple. Denying care costs states far more than providing it. Expanding access to early and continuous treatment saves families, communities, and taxpayers both financially and emotionally.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">My First Episode: 2006</span></span><span><span style="color:rgb(0, 0, 0)">In 2006, while living in Bow, New Hampshire, I experienced my first psychotic episode and was hospitalized at Catholic Medical Center in Manchester.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">At the time, I was married, raising a young child, and had health insurance. Most importantly, healthcare providers recognized that I needed early intervention.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">My first episode was triggered by unresolved trauma from sexual abuse. I lacked the coping skills at the time to process it. During psychosis, I believed license plates carried special meanings and messages. My perception of reality was profoundly altered. The experience was terrifying and consuming. I had no control over the thoughts entering my mind &mdash; only over how I responded to them.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Because my family got me to the hospital in time, I was in a safe environment when I lost touch with reality. Medication gradually resolved the delusions. No one was harmed. I was treated as a patient, not a criminal.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">That early intervention changed the trajectory of my life.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><u><strong>Diagnosis, Treatment, and Stability</strong></u></span></span><br /><span><span style="color:rgb(0, 0, 0)">Over time, my diagnoses evolved &mdash; including delusional disorder, schizophrenia, and later schizoaffective disorder. I learned that without medication, or during certain medication changes, my perceptions can become unreliable.<br /></span></span><br /><span><span style="color:rgb(0, 0, 0)">Hospitalization and antipsychotic treatment allowed me to return to reality and regain insight. I learned to trust in others again.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">I also learned that sobriety is essential for my stability. I live with zero alcohol or mind-altering substances. I ground my hope in reality through recovery principles and 12-step sobriety.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Today, I understand that changes in my mental health can function like a medical alarm system.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">In January 2026, mental health symptoms prompted me to seek emergency care. That evaluation revealed a massive blood clot in my leg &mdash; a potentially fatal condition. My mental health symptoms led me to the hospital in time to save my life.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Just as a smoke alarm signals danger, changes in mental health can signal underlying medical conditions requiring urgent attention.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><u><strong>What Could Have Happened</strong></u></span></span><br /><span><span style="color:rgb(0, 0, 0)">Without timely treatment, I could have been jailed for a treatable illness.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">During psychosis, my beliefs felt real, urgent, and actionable. If intervention had been delayed, I might have acted on those beliefs in ways that violated the law. Early care prevented harm, preserved my family, and kept me out of the criminal legal system.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The timing of treatment matters.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><u><strong>Returning to Work and Giving Back</strong></u><br /></span></span><span><span style="color:rgb(0, 0, 0)">With medical clearance, I returned to school and work. I graduated from the University of New Hampshire with top grades. I resumed teaching in allied dental education, managed oral health programs, volunteered in my community, and raised my daughter.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Over time, I advanced professionally, including serving as an Adjunct Clinical Associate Professor at NYU. I have lived and worked in New Hampshire, New York, Kansas City, and beyond &mdash; maintaining strong community ties and continuing to contribute economically and socially.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Today, I pay taxes. I support my family. I work to improve health outcomes for others.</span></span><br /><span><span style="color:rgb(0, 0, 0)">Keeping me alive and well allows me to keep contributing.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><u><strong>Preventive Care Reduces Long-Term Costs</strong></u></span></span><br /><span><span style="color:rgb(0, 0, 0)">As a public health professional, I emphasize that preventive care &mdash; mental, medical, and dental &mdash; reduces suffering and long-term expense. Seeking care early saves lives.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Serious mental illness is treatable. Recovery is possible. Early access to compassionate, evidence-based care saves lives and money.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Mental illness does not erase a person&rsquo;s humanity. It reveals our shared vulnerability.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">With timely medical treatment, people can recover, work, love, and thrive.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)"><em>Treatment saves. Neglect costs.</em></span></span><br /><br /><span><span style="color:rgb(0, 0, 0); font-weight:700">In health,</span></span><br /><span><span style="color:rgb(0, 0, 0)">Ashley C. Grill, MPH, RDH</span></span></div>  <div><div style="height: 20px; overflow: hidden; width: 100%;"></div> <hr class="styled-hr" style="width:100%;"></hr> <div style="height: 20px; overflow: hidden; width: 100%;"></div></div>  <div class="paragraph"><em><span style="color:rgb(0, 0, 0)">Today, because Ashley had access to timely, appropriate medical care, she is living a full and meaningful life in recovery. She is healthy, employed, creative, engaged in her community, and grounded in sobriety. She maintains loving relationships, contributes professionally, pays taxes, and uses her lived experience to educate and uplift others. Her life is not defined by her diagnosis, but by her resilience, discipline, faith, and commitment to wellness. Recovery did not happen by chance &mdash; it happened because treatment was available when she needed it. Ashley&rsquo;s story is proof that when we invest in care, we preserve human potential.</span></em></div>]]></content:encoded></item><item><title><![CDATA[Her Hands Were Cuffed]]></title><link><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/her-hands-were-cuffed]]></link><comments><![CDATA[https://www.nationalshatteringsilencecoalition.org/blog/her-hands-were-cuffed#comments]]></comments><pubDate>Mon, 13 Apr 2026 09:42:42 GMT</pubDate><category><![CDATA[advocacy]]></category><category><![CDATA[anosognosia]]></category><category><![CDATA[bipolar disorder]]></category><category><![CDATA[dual diagnosis]]></category><category><![CDATA[family]]></category><category><![CDATA[hospitalization]]></category><category><![CDATA[incarceration]]></category><category><![CDATA[mental illness]]></category><category><![CDATA[Neglect Costs]]></category><category><![CDATA[psychosis]]></category><category><![CDATA[schizophrenia]]></category><category><![CDATA[serious brain illness]]></category><guid isPermaLink="false">https://www.nationalshatteringsilencecoalition.org/blog/her-hands-were-cuffed</guid><description><![CDATA[           My daughter, D, has a nine-year history of serious mental illness beginning at the age of eighteen. Over that time, she has received several diagnoses, including schizophrenia, bipolar I disorder with episodes of psychosis, depression, and PTSD. A neurological lack of insight, not believing she&rsquo;s ill, often shattered her sense of reality. This is called anosognosia and resulted in her refusal of treatment.&nbsp;When her illness is controlled, D functions at a very high level. Sh [...] ]]></description><content:encoded><![CDATA[<div><div class="wsite-image wsite-image-border-none " style="padding-top:10px;padding-bottom:10px;margin-left:0;margin-right:0;text-align:center"> <a> <img src="https://www.nationalshatteringsilencecoalition.org/uploads/1/4/4/2/144281710/caryn-nssc-post-image_orig.png" alt="Picture" style="width:auto;max-width:100%" /> </a> <div style="display:block;font-size:90%"></div> </div></div>  <div>  <!--BLOG_SUMMARY_END--></div>  <div class="paragraph"><span><span style="color:rgb(0, 0, 0)">My daughter, D, has a nine-year history of serious mental illness beginning at the age of eighteen. Over that time, she has received several diagnoses, including schizophrenia, bipolar I disorder with episodes of psychosis, depression, and PTSD. A neurological lack of insight, not believing she&rsquo;s ill, often shattered her sense of reality. This is called anosognosia and resulted in her refusal of treatment.&nbsp;</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">When her illness is controlled, D functions at a very high level. She has completed college courses, maintained employment, built friendships, played several musical instruments, and sustained meaningful relationships with her parents and family.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">However, in the month preceding D&rsquo;s arrest in January 2024, she had at least seven separate encounters with police in the southwest Washington area. During this time, she was in active psychosis and displayed increasingly intrusive behavior, including stepping into traffic, loitering, refusing to leave businesses, raging, and threatening people. Police provided hotel vouchers on multiple occasions, and we also paid for hotel rooms, but D would not stay longer than one night.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">During that same month, D was placed on four involuntary holds ranging from 24 to 120 hours at three different area hospitals. Each time law enforcement brought her in, I advocated strongly for a continued civil commitment order. She was repeatedly discharged. There were no civil commitments pursued during this period. We were told there were no available beds in community mental health hospitals, and Washington state psychiatric hospitals were reportedly discharging civil patients to make room for individuals waiting in jail.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">D was repeatedly discharged back to homelessness &mdash; without her ID, phone, money, credit or debit cards, glasses, and without any notification to, or coordination with, family. By failing to pursue involuntary treatment while she was hospitalized, multiple organizations and facilities failed D during the critical month before her arrest.</span></span><br /><span><span style="color:rgb(0, 0, 0)"><br />The cycle continued: police encounter, hospital evaluation, discharge &mdash; repeat. As her psychosis deteriorated further, she became increasingly confused, frustrated, and hostile while wandering the streets.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">I placed at least three calls to the DSHS mental health crisis line (Clark County Crisis Services) and was told they would not send a designated crisis responder. I was told that when the situation became bad enough, I should &ldquo;just call 911.&rdquo;</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">One night at 2:00 a.m., PSU campus security called asking if we could come pick up D, who was hiding in the student union for shelter during an incoming ice storm. We brought her home. She surrendered a small pocket knife and marijuana she had somehow acquired while on the streets. Joe went to bed, but the following morning, D was in a raging psychotic state.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">On the morning of January 10, 2024, D kicked holes in the walls, vandalized our home, threatened me, and ultimately assaulted me. She grabbed my throat. I immediately forced her hands off and was not physically injured, but locked myself in the bathroom and called 911.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The responding officers explained that under domestic violence protocols, they were required to make an arrest. Because a throat grab constitutes Assault II under Washington law, D was charged with a felony.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">The civil mental health system requires that a person be a clear &ldquo;danger to themselves or others&rdquo; before intervention. But once that threshold is crossed, the response often becomes criminal rather than medical.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">I advocated for D in court, submitting a Victim Impact Statement and requesting entry into the mental health court process. D could not obtain help through the civil system. She did not deserve a felony conviction, nor did she require a &ldquo;not guilty by reason of insanity&rdquo; defense. She needed treatment, a new caseworker, and stability so she could return to functioning in society.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">D was in such a profound state of psychosis that she could not even be arraigned. She remained in Clark County Jail for over a month before being transferred to Western State Hospital for competency restoration. After ninety days in the state psychiatric hospital, she was returned to jail.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">At that point, D was beginning to emerge from the fog of psychosis. From jail, she started arranging future services. Once she secured placement in a 30-day rehabilitation program, I paid a $500 bond to secure her release on $5,000 bail.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Upon release, D was unable to obtain her prescribed medication through the state system in a timely manner. We had to use our private family health insurance to ensure she received her urgently needed medication. Then, for her to qualify for the rehabilitation program &mdash; which accepted only Medicaid &mdash; we were required to remove her from our private insurance.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">After a year of delays, waivers, and continuances with her public defender, D was finally admitted into the Clark County Mental Health Court process in the summer of 2025.</span></span><br /><span><span style="color:rgb(0, 0, 0)">As part of that program, she was required to leave her halfway house &mdash; which she described as an &ldquo;un-staffed insane asylum&rdquo; &mdash; and move into a sober living house. There, she was accountable to chores, urine analysis testing, sobriety meetings, medication compliance, therapy, a caseworker, and weekly court appearances.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Reflect for a moment on the immense stress endured by D, the heartbreak experienced by our family, and the extraordinary financial cost to society for repeated police responses, multiple hospital evaluations, extended jail stays, a 90-day state psychiatric hospitalization for competency restoration, public defender services, prosecution, court proceedings, and the mental health court program itself.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">All of this &mdash; the trauma, the criminal record, the enormous public expense &mdash; could have been avoided with timely, responsive civil commitment and access to stabilization when she first began decompensating.</span></span><br /><br /><span><span style="color:rgb(0, 0, 0)">Today, through medication, sobriety, improved sleep, and structured support, D has avoided relapse into psychosis for over two years. She has a job, a boyfriend, a supportive community, and is enjoying her life. She has successfully progressed through three phases of Mental Health Court and is entering the final fourth phase. Upon completion, her felony record will be expunged, allowing her to pursue better employment opportunities.<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">We are hopeful for her future.</span></span>&#8203;</div>  <div><div style="height: 20px; overflow: hidden; width: 100%;"></div> <hr class="styled-hr" style="width:100%;"></hr> <div style="height: 20px; overflow: hidden; width: 100%;"></div></div>  <div class="paragraph"><em><span><span style="color:rgb(0, 0, 0)">The financial cost of D&rsquo;s untreated psychosis to the state of Washington has been substantial. Her repeated police encounters and emergency evaluations, extended jail stays, and a 90-day state psychiatric hospitalization add up quickly. Washington&rsquo;s average daily jail cost is approximately </span><span style="color:rgb(0, 0, 0); font-weight:700">$150&ndash;$200 per day</span><span style="color:rgb(0, 0, 0)">; D spent over </span><span style="color:rgb(0, 0, 0); font-weight:700">30 days in Clark County Jail</span><span style="color:rgb(0, 0, 0)">, costing an estimated </span><span style="color:rgb(0, 0, 0); font-weight:700">$4,500&ndash;$6,000</span><span style="color:rgb(0, 0, 0)">. Her 90-day stay at Western State Hospital, where competency restoration occurred, likely cost the state </span><span style="color:rgb(0, 0, 0); font-weight:700">$72,000&ndash;$90,000</span><span style="color:rgb(0, 0, 0)">. In addition, repeated short emergency holds, police responses, and associated hospital evaluations &mdash; which often exceed </span><span style="color:rgb(0, 0, 0); font-weight:700">$1,000 per visit</span><span style="color:rgb(0, 0, 0)"> &mdash; add tens of thousands more. When public defense, prosecution, court proceedings, and mental health court oversight are included, the total fiscal impact to taxpayers easily approaches </span><span style="color:rgb(0, 0, 0); font-weight:700">$150,000&ndash;$200,000</span><span style="color:rgb(0, 0, 0)"> or more.<br />&#8203;</span></span><br /><span><span style="color:rgb(0, 0, 0)">And those figures do not capture the emotional cost to D or our family &mdash; the trauma, fear, and years of disruption that cannot be quantified in dollars. Early, effective civil intervention and access to stabilization when her symptoms first escalated would have cost far less, preserved her dignity, and prevented unnecessary harm. Treatment saves. Neglect costs &mdash; in human suffering and in taxpayer dollars.</span></span></em></div>]]></content:encoded></item></channel></rss>