by anonymous NSSC member
We expected to be celebrating my son Ross’* 37th birthday at our home in Massachusetts with family by his side. Instead of in our home hearing us sing Happy Birthday to him and enjoying cake, Ross was alone in a Massachusetts state hospital. He suffers from a severe mental illness/serious brain disorder. Specifically, he was diagnosed with bipolar 1 with psychotic features. After being accepted to an Ivy League college, Ross studied social policy and social work, and excelled academically while playing four years of college football. He was on a highly successful career path having graduated from a prestigious college. After being employed in governmental prevention programs funded by the CDC, he went on to teach Spanish at an elite school, coach sports, and chaperone students in immersion programs across the globe. Ross complained about the debilitating side effects of his psychiatric medication. He had recently taken himself off medication, after being compliant for thirteen years, and truly believed his success would continue without taking medication. As a result, he became quite psychotic and developed problematic behaviors of which he was totally unaware. This lack of insight into his psychosis is a common neurological condition known as anosognosia. Ross had numerous encounters with police. His psychosis took the form of believing he was assisting society by reporting what he believed were safety concerns to law enforcement officials. Ross became an annoyance to the police. They were informed of his serious mental illness, but wanted his behavior to stop. A parked police car would sit outside his apartment, observing him, waiting for any opportunity to arrest him. Ross eventually moved out of his apartment, and moved back in with his parents, returning to his childhood home in a small suburban community where he was known as a hero. Unfortunately, because of the behaviors he exhibited as the disorder progressed, neighbors began calling the police. The police went to the neighbors’ homes to conduct extensive interviews. They advised the neighbors to file criminal complaints against Ross for disturbing the peace. Ultimately, Ross was arrested in our own backyard. He had questioned an unknown worker in the neighborhood as to why the worker was on his property. Ross then called the police to report this stranger. The police reported that they had no knowledge of repair work being done on our street. Ross became frightened and told the person to get off his “f—ing property” or he would “kill him!” He was hundreds of yards away from the worker. The police were called and handcuffed Ross. It is important to note that other neighbors also called to complain about the worker. I asked the arresting officer why he didn’t issue an involuntary transfer to the hospital for him, knowing his mental health status. I was told by the officer that he simply didn’t know how to do the paperwork. Ross has been criminalized in the Massachusetts judicial system for having a serious mental illness. Massachusetts is one of two states in the United States which doesn’t have a structure in place to treat the mentally ill who end up in the criminal system. Without an Assisted Outpatient Treatment (AOT) program in place, the most vulnerable in our state are punished and denied treatment for their mental illness. AOT is court-ordered outpatient treatment that reduce rates of incarceration, hospitalizations, and homelessness. Massachusetts and Connecticut are the only two states that don’t allow AOT. After Ross served his jail time, the police department stepped up their efforts to keep him out of the community. He was brought to court again for disturbing the peace while wearing a Brittany Spears shirt. Ross was outside a liquor store where he had previously worked and he was told that people in the community felt uncomfortable around him. When in jail, Ross became sicker than I had ever observed. He was unmedicated and had little, if any, access to mental health services. He allegedly attacked a guard and was brought to court. Reportedly, Ross was pepper sprayed during the incident which was excruciatingly painful. This escalated his psychosis. He was transported to a different jail, which increased his paranoia. I reached out to the clinical director of the jail and pleaded with them to send him to a psychiatric hospital, to no avail. I attended most of his court hearings, and never once did the mention of serious mental illness get addressed with an action plan presented to improve Ross’ level of functioning. After his first involuntary commitment hearing in late February, he was considered competent to make his own decisions and sent back to jail while waiting for his open cases to be heard. I was extremely concerned about his deteriorating health as he had not been medicated for over three months. Ross is currently at Bridgewater State Hospital, which technically falls under the jurisdiction of the Department of Correction. While at Bridgewater, his commitment hearings keep getting delayed by the Committee For Public Counsel attorneys. I referenced his serious mental illness not being addressed in three local courts. Not one judge acknowledged his impairment in judgment by connecting it to his serious mental illness. As each day passes, Ross misses every holiday and family gathering. His beloved grandmother died, who was his confidante and greatest supporter. He was unable to attend her unveiling ceremony. If the court had focused on mental health instead of punishment, Ross would be in a different place. It is getting harder for me to live without him. I look around our home and see traces of a happy childhood and a young adult who excelled at everything he pursued. I wonder if he will ever see his dog, sleep in his bed, or play his guitar. Will I ever be able to hug him and prepare his favorite foods? How will he get his life back on track by being involved in the criminal justice system? These are the questions that haunt me nightly. I feel panicked, frightened and full of despair. My son's story is one of thousands that support the critical need for AOT in Massachusetts. Not only would an AOT program have helped my son, but these programs have been shown to save millions in taxpayer money being spent on untreated mental illness, crisis intervention, law enforcement, jails, and more. The time is now to support legislation in favor of AOT. Massachusetts must do better to help the seriously mentally ill. *Name has been changed to protect identity.
22 Comments
7/28/2024 06:31:53 am
As a Massachusetts Licensed Independent Clinical Social Worker (LICSW) in private practice I am concerned that the mental health needs of our most vulnerable population are being overlooked without the passage of the AOT legislation. This blog post reflects the helplessness of family to protect their loved ones from the trauma of being captured by the criminal justice system when a health crisis occurs. I support the passage of this legislation.
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francine
7/28/2024 06:44:43 pm
Some laws and some practices come from a thinking of centuries ago. We can go to the moon but we cant figure out what mental illness is and how to treat it. It is not a crime. People need to be helped not harmed by incarceration Where is our humanity ,compassion, kindness and understanding? It is time to recognize what century we are living in.
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This is a documented, logical, and heartfelt commentary on a long overdue serious issue. Massachusetts which is proudly progressive in so many ways is puritanical in treating mental illness as a crime and preventing medical care and compassionate intervention for the mentally ill in place of incarceration. THE LAWS NEED TO CHANGE NOW!
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Laura
7/28/2024 09:49:51 am
As a family member, I have witnessed how devastating each passing day is. Ross has been grossly undersized, his parents try daily to fight for his rights while managing their own heartache. This is a tragic experience for all and the laws need to changed immediately.
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Pat
7/28/2024 10:27:35 am
I support the passage of this legislation. As a mother of a child with addiction I saw this myself. Placing a child with mental health problems in a jail with criminals makes no sense.
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Linda M DiCenso
7/28/2024 11:30:31 am
This story is so sad for Ross and all of his family. But, the part that angers me is that in Massachusetts ( a supposedly progressive state) the treatment of citizens undergoing mental concerns are treated in a fashion of the 19th century. When will the state protect all of its citizens and treat their needs with respect?
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Being in the Human Service field for over 43 years I feel that people with mental illness need to be placed in a very safe place not an institution but houses where they will get continual care 24/7 365. It's like everything else where not doing what we're supposed to be doing when it comes to people's Mental Health addictions Etc thank you
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John
7/28/2024 02:02:30 pm
After reading this story,one has multiple reactions. First- how outrageous is it that police and judges still do not understand the impact of mental illness. As a neuropsychogist I understand that science hasn't caught up with the publics understanding, however that is no excuse for being blind to mental health concerns. I completely support the need for an Assisted outpatient treatment program and was shocked that in a liberal state like Massachusetts does not already have this program. Appropriate treatment such as this needs to be the norm. It's lack of treatment programs and instead using punishment that exasperates mental health issues, leaving a vulnerable population more vulnerable as anxiety increases regarding the future. AOT is a must
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Nancy
7/28/2024 04:50:50 pm
The MA. Court system has failed this family and I am sure there are many others. We need to do more to help those with mental illness. The laws need to be changed to provide services now!
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Carol Ballantyne
7/28/2024 07:14:08 pm
What happened to this young man is a travesty.. He has a history that shows him to be a person of multiple talents. Mental illness is an insidious disease and one that is often misunderstood by the community and even institutions set up to serve the mentally ill. Without approximate treatment so much is lost- sometimes even lives.
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Hersh Goldman
7/28/2024 08:09:05 pm
Some handicaps like blindness or paralysis are obvious. But cases of mental illness are not always easily recognizable and we need safeguards as an extra layer of protection to protect our innocent vulnerable sick from irreparable enforceable harm from the very institution established to protect us and our families. AOT sounds to me like something that could prevent a lot of tragic systemic mistakes against our vulnerable sick innocents.
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Suzanne
7/29/2024 04:55:39 am
I am saddened to read this-unfortunately not surprised. The lack of understanding and compassion is difficult to comprehend. The increase in homelessness is also an example of the lack of support for people who have mental health issues and never received the proper responses. How many other families are going through this? Too many people are being lost due to the lack of outreach, education and programs.
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Janice
7/29/2024 05:51:33 am
These laws need to be changed in Massachusetts. Mental Health issues need to be addressed instead of being in hiding. Our children are suffering and are languishing in jail cells because we are not addressing the needs of folks like Ross. as a resident and taxpayer of the Commonwealth I want to see the laws in Massachusetts aid and support our residents with mental health concerns.
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David and Miriam Rubin
7/29/2024 09:31:23 am
Having known Ross and his family for years, we feel his pain and his families’ acute suffering in a personal way. The path Ross was forced to travel is unfair and unforgiving. Here in New York, we were involved with an individual suffering from mental illness who was facing criminal charges, carrying a mandatory two-year jail sentence. We filed a motion in criminal court to have the court transfer the case to Mental Health Court (where the judges are trained in psychology and understand mental health). Thank God, the judge was understanding and fair. Our motion was accepted and the individual was put on probation, and the court was updated as to his mental health treatment protocol.The outcome was extraordinary, with the individual going through five years of probation without a hitch. He is now in a much better place. May God give the family much strength and perseverance in their noble endeavor with a most successful outcome.
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Jessica
7/29/2024 09:34:24 am
Unless someone with SMI voluntarily admits themselves for treatment, the way MA laws are written it can be very difficult (almost impossible) for families to obtain care for their loved one once they are in the midst of a mental health crisis.
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Ross’ Brother
7/29/2024 11:01:18 am
As Ross’ brother, this is heartbreaking. Ross is no longer the person I once knew. Clinical intervention would bring him back to the person he once was…at the very least someone I could start recognizing again. But now, stuck in endless incarceration, it doesn’t seem like we’ll get that person back anytime soon. The focus should be on mental health and not punishment. I fully support the critical need for an AOT program in Massachusetts.
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Marc
7/30/2024 02:39:27 pm
I fully support the critical need for an AOT program in Massachusetts. Where is the governor? Where are the state officials? All it takes is one leader to step up.
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Heartbreaking! Not fair to a brilliant, warm and loving person! Not meaning to hurt anyone! Just that without meds a different person emerges. No one with that condition should be penalized by the court system! It deprives need for care of a quality person for mental health services! We desperately need the legislation to pass!!
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Toby Gary
8/6/2024 02:05:24 pm
I am a very dear friend of Ross and his family. Thinking of Ross being locked up in jail like a criminal is heartbreaking. Ross is one of the, kindest, loving and gentle young man. If Ross were given the right opportunity to figure out where he belongs and if he were allowed to get the help he so obviously needs, he could go home to his very loving and supportive family. Massachusetts, you need to wake up realize there are a lot of people out there like Ross that need an AOT Program. Please support the starting of this program in Massachusetts.
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Laura
8/23/2024 06:13:47 am
My son is in the CJS bc of his untreated bipolar with psychotic features illness. He is 22 and altogether a ship lost at sea. I’ve emailed the legislators and no one is helping him. AOT would have saved him from spiraling out of control and almost killing in extreme psychosis. I think we should each print this blog and all these comments and mail it directly: Governor Maura Healey's Office of Constituent Services. Massachusetts State House, 24 Beacon St., Office of the Governor, Room 280, Boston, MA 02133
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Stephanie Beilin
8/23/2024 09:22:40 am
Thank you Laura. As Marc stated, all it takes is one leader to make a difference. Leaders must lead.
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