National Shattering Silence Coalition

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      • CT: Karen Desjardins
      • CT: Melissa Valdivia
      • DE: Heidi Nasstrom Evans
      • FL: Joanne Schmitz
      • FL: Jack Wood
      • GA: Daniel White
      • HI: Chad Koyangi
      • IL: Cindy Tank-Murphy
      • IN: David Doerner
      • IA: Cathy Bullock
      • KY: Angeline Davis
      • MA: Lynda Cutrell
      • ME: John Nutting
      • MI: Carla Van Farowe
      • NH: Mara Briere
      • NJ: Chip Angell
      • NY: Marianna Vertsman
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      • OH: Darrell Herrmann
      • OR: Breanna Smith
      • PA: Marcie Sohara
      • PA: Christine Wirbick
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      • TX: Julie Plank
      • UT: Sherri Wittwer
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      • WA: Leanna May Franklin
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    • BUILD A SYSTEM THAT CARES
  • WHO WE ARE
    • ABOUT US
    • STRATEGIC ROADMAP
    • TEAM
    • BOARD OF DIRECTORS
    • STATE DIRECTORS >
      • MEET YOUR 31 DIRECTORS
      • AL: Holly Strayer
      • AK: Krista Schooley
      • AZ: Crystal Fox
      • CA: Jacqueline Janssen
      • CT: Karen Desjardins
      • CT: Melissa Valdivia
      • DE: Heidi Nasstrom Evans
      • FL: Joanne Schmitz
      • FL: Jack Wood
      • GA: Daniel White
      • HI: Chad Koyangi
      • IL: Cindy Tank-Murphy
      • IN: David Doerner
      • IA: Cathy Bullock
      • KY: Angeline Davis
      • MA: Lynda Cutrell
      • ME: John Nutting
      • MI: Carla Van Farowe
      • NH: Mara Briere
      • NJ: Chip Angell
      • NY: Marianna Vertsman
      • NC: Beth Wallace
      • OH: Darrell Herrmann
      • OR: Breanna Smith
      • PA: Marcie Sohara
      • PA: Christine Wirbick
      • RI: Ruth Scott
      • SC: Susan Lea
      • TX: Julie Plank
      • UT: Sherri Wittwer
      • VA: Mary Troy
      • WA: Leanna May Franklin
    • PARTNERS
    • NATIONAL SOLIDARITY WALL
    • SMI INTELLIGENCE FAQ
    • SOCIAL IMPACT
    • CONTACT US
  • IMPACT INITIATIVES
    • CRISIS TO CARE
    • BEYOND STIGMA
    • MOBILIZING DIRECTORS
    • SMI PEER ALLIANCE
  • MEDIA & INSIGHTS
    • TREATMENT SAVES, NEGLECT COSTS: THE EVIDENCE >
      • SEE THE EVIDENCE
      • SHARE YOUR EVIDENCE
    • FRONTLINE PERSPECTIVES
    • NATIONAL POSITION PAPERS
    • PRO & PEER TALKS
    • EVENTS & OUTREACH >
      • SYMPOSIUMS
      • CONFERENCES
    • CAMPAIGNS >
      • BEYOND STIGMA CAMPAIGN
      • STILL HERE CAMPAIGN
    • PODCASTS
    • IN THE NEWS
  • RESOURCES & ADVOCACY
    • IN JUSTICE
    • UNDERSTANDING PSYCHOSIS GUIDE
    • SMI CAREGIVERS GUIDE
    • POLITICAL ADVOCACY GUIDE
    • HELPING IN CRISIS GUIDE
    • TREATMENT TERMS GUIDE
    • QUARTERLY RESOURCE GUIDE
    • EDUCATION & ADVOCACY TOOLS
  • SUPPORT GROUPS
    • THE ANCHOR
    • THE HIDDEN SENTENCE
    • SURVIVORS OF LOSS
    • SMI CAREGIVERS
    • SUCCESS CIRCLE
    • REPLANTING LIVES
  • BLOG
  • PRESS ROOM
  • JOIN
  • DONATE
    • BUILD A SYSTEM THAT CARES
A Roadmap for Families

SMI Caregiver’s Guide:
Hope, Not Heartbreak

The essential blueprint for replacing systemic neglect with medical accountability.

A plain-language tactical guide to navigating the 911 Gap

Caring for someone with a severe mental illness is challenging enough without battling the silos of a fractured healthcare system and the criminal justice complex. To help families bridge this gap, NSSC directors and veteran caregivers collaborated to create a comprehensive, eight-page resource designed to translate complex laws into actionable advocacy.

The Anatomy of the Guide

HIPAA Dynamics

Plain-english strategies for understanding health information privacy during a crisis and preventing HIPAA from being used as a weapon against care.

Criminalization

Proven methods for helping loved ones avoid or manage involvement with the justice system during a medical emergency.

Navigating Crisis

A tactical roadmap for parents and partners to bridge the communication gap between medical providers and legal authorities.

the impact of humanity

"The caregivers guide became my lifeline in the overwhelming struggle to navigate my loved one’s psychotic illness. It equips you to confront the harsh truths within a fractured mental health system, transforming despair into empowerment when it matters most."
Laura Craciun Family Advocate | Massachusetts
"When I was in absolute psychosis, HIPAA became a weapon against my own recovery. Your pamphlet is essential; it truly helps guide loved ones and informs those who are ill. It highlights how critical your resources are for navigating these impossible situations."
Chris Jay Lived-Experience Expert | New York

equip your advocacy

​Download your free guide now as a PDF or view the online flip book — no sign-up required. If this resource helps you on your journey, please share your experience with us using the form below!
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View Online Flip book
Download Free Full Page PDF
Download Free Trifold PDF

Your voice is a catalyst for change: share your story

Whether you are a family member, an individual with lived experience, or a caring ally, we want to hear your truth.

​For too long, severe mental illness has been hidden in the shadows of stigma and shame. But isolation ends when we speak. When you share your experience, you are not just telling a story—you are joining a movement. You are validating someone else’s pain, empowering policymakers, and helping us build a world where immediate, compassionate care is the standard, not the exception.

Every voice contributes to the collective roar for change.

How your story helps:
  • It Educates: Your experience helps policymakers understand the real-world impact of current laws.
  • It Connects: It helps another family member or individual feel seen and understood.
  • It Powers Our Advocacy: Your words are the undeniable proof we use to demand action.
  • It Verifies Impact, Securing the Future: Your testimonials serve as vital proof of our social impact.

Ready to find your voice? Follow the steps below to submit your story or testimonial. 
Submit My Catalyst for Change Story


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Disclaimer: NSSC is not liable for any information, service or product obtained from this site. No legal or medical advice is provided. Information on site is not a substitute for professional healthcare. Please consult your healthcare provider for medical advice. Support groups are confidential and for educational and supportive purposes only. All views expressed in media posts and perspectives are those of the contributing authors and not necessarily NSSC or its affiliates.

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